Donation Station

Being poor SUUUUUUUUCKS.

I really took so much for granted over the past decade or so. Life is just very, very different when I can't reach for my credit card to solve any problem. It's been kinda nice that I've been forced to eat at home (and I have truly been eating like a depression-era peasant...I've gotten extremely creative with nothing much more than a potato). But it's crazy not being able to swing into Starbucks for a quick caramel frappachino, or to the bar for a shot when a friend is in town. It's been embarrassing making excuses not to hang out because I can't afford the gas to get there, or dinner or drinks or whatever we were meeting for. Now, I literally find myself questioning if I'm using more toilet paper than necessary, and wondering about the legal hurdles keeping me from shutting off my utilities and living with kerosene lamps and an outhouse.

Seriously, though, I had to be very, very, very desperate to consider plasma donation. Not because it's inherently risky—it's not—but because my personal health history makes me a really terrible candidate, and my immune system is 100% not adequately prepared to keep me alive through this. Their screening process is designed to keep people like me from donating due to the risks to our health, but I have honestly never been this desperate for money. Even during that brief period between semesters in college when Rob and I squatted in an abandoned house and bought cigarettes with pennies, I still felt more financially stable than I do right now. So, yeah, I'm fucking desperate. And it's quite clear that the other donors are also not being entirely truthful for the sake of remaining eligible, but the instant cash for a relatively painless couple of hours is more than enough incentive to lie. I'm just not certain that the money is worth what my body is going through.

I've felt like I've had a cold basically since the first session, and after each donation I crash for the rest of the night and usually the entire following day as well. When I donate on Wednesday, that means I'm a zombie basically until I wake up Friday, but Friday is designated as my second donation day of the week. So I go again, and end up feeling like crap until Sunday. From Sunday until Wednesday I feel "okay", and then the cycle starts again. But I don't really feel totally "okay", ya know? By then, my arm is less sore and the bruising around the injection site has disappeared, but the constant slight head cold has kept my throat sore, my eyes dry, and my nose running. I even have a scab on my nose behind my septum ring from where I've been blowing with cheap toilet paper instead of the Puff's Plus with Lotion that I never fully appreciated before.

The donation itself isn't exactly fun—you're trapped there with the needle in your arm as it sucks out your blood, then spins it in a centrifuge to remove the plasma. While the blood is being sucked out, the blood pressure cuff is constantly as tight as it will go, and you have to keep pumping your fist like you're milking your own udders. Then the centrifuge brakes and the cuff loosens, and you have to sit still while the machine pumps your plasma-less blood back into your body. NOT a great feeling. This cycle happens over and over until they have a full liter bottle of plasma, maybe 5 or more cycles. At the end, your final blood round is mixed with saline, and it's pumped back in while you freeze to death and hourly workers pull out the IVs and put cash on your card.

My next donation is Wednesday, and I'll only get $25 for it. But my boyfriend and I have talked about the idea of me being a camgirl, so hopefully something will come of that before I let the plasma center suck the rest of my life out. Not sure how much of a market there is for pudgy camgirls with stretch marks and low self esteem, but I'd rather find out than risk getting the plague from the plasma center.

Zoloft Is Making Me Fat (...Maybe?)

I've ALWAYS been anxious. My parents have videos of me as a kid playing on a swing set, chattering about my fears. "What if I fall off and someone steps on me and my leg breaks off and then someone trips over it and breaks their head open and then I try to stand up and break my head open and we die?" "What if we're driving and an electric pole falls and hits the car and smashes us and we all die?" "What if I push the glider too hard and it comes and slices my head open and I fall down and a worm crawls into my head and lives there?"

I've dealt with my anxiety in a number of ways. When I was younger, I just cried a lot and freaked out all the time. In college, I used drugs and alcohol to help self-medicate. After the fire that burned down my dorm (with me in it), I was sent to a therapist who put me on Paxil. I only took that for a little while (it made me black out all the time when I drank, and I wasn't willing at the time to give up drinking). After my open heart surgery, I was put on a low dose of Xanax. For the last 6 or so years, I've taken a low dose of Xanax daily, but it's lost its effectiveness over the years. I mean, it didn't really REALLY help much anyway, but I guess it made me feel better. Anyway, I had to go in for a refill last month and my doctor decided to try putting me on something else.

My doctor (actually, she's a nurse practitioner but I've never met the doctor) told me that Zoloft would be a good choice for me, as the side effects aren't horrible and it's not addictive like Xanax. Being the anxiety-filled freak I am, I immediately started Googling side-effects and was horrified by the staggering volume of complaints linking Zoloft to weight gain. I almost didn't even fill my prescription. I was freaking out. But I decided to try it anyway. When I was on steroids back when I first started Weight Watchers, everyone said I would gain weight but my doctor said it was because of increased appetite, and as long as I watched my eating I wouldn't gain. The steroids messed me up a little, but she was right--I didn't gain any weight.

So when I started the Zoloft I figured I would just keep tracking like always, and I increased my activity a little. The weather's been nice so I've been walking more than ever, I've been working in the yard, taking long walks at work during lunch, swimming, dancing, moving all I can. I've also been eating fine. I mean, I'm still always hungry, but I'm tracking everything and working hard to stay under my Points.

But I FUCKING GAINED. And when I groaned on the scale, saying "I did everything right! I should have lost! Maybe it's the Zoloft..." my Weight Watchers meeting leader immediately agreed. She said she's seen too many people gain weight on Zoloft. Other people started chiming in--"It made me a fatty!" and "Stop taking it right now!"

I gave myself a few weeks to feel the effects, and I actually really liked what Zoloft did for me (it didn't help my anxiety so much, but it did keep my temper under control and made my reactions to things a little less extreme). I just couldn't deal with the weight gain. I was on Zoloft to help alleviate my anxiety, and gaining weight increased my anxiety exponentially. Not great.

So I talked to my doctor but now, as of yesterday, I'm weaning off the Zoloft and onto Lexapro.

We'll see what happens. But I will totally be stressing out about it, just FYI.

Playtime

It feels so good to be able to play again.

I mean, really play.

To chase after my dogs and dash around the yard with their toys. To burst into activity and wind up giggling and flushed and breathless. To race my nephew to the playground at the drive-in without being embarrassed that everyone will be watching the fat girl flounder.

These are things I've missed without even realizing it. As my world begins its slow thaw after a desperately long and hard winter, I'm getting out more and testing the limits of my new heart valve.

On Friday after work, the temperature actually reached 60 so we took the convertible (with the top down!) to the park and hiked around places that I've only ever seen from inside a car. We hiked for 4 miles, passed through a bird sanctuary where the songs of dozens of species joined together in a rich cacophony, walked around the rim of a still-frozen lake where the ice was so thin you could see water rippling below the surface, and at one point broke through the trees to find an unexpected merry-go-round rusting at the edge of a picnic area.

I had thought merry-go-rounds were banned from playgrounds years ago, so I was excited enough to see it that I didn't care who saw ME. I sprinted to the contraption, threw myself in the middle, and held on as my girlfriend grabbed the bars and started spinning. A year or so ago, this wouldn't have happened. First, I wouldn't have even seen the merry-go-round because there's no way I would have been hiking. With 95 extra pounds and a heart valve that was almost completely grown shut, I wouldn't have even been at the park. I would have been home on the couch, enjoying the warmer weather through the window. And if I somehow was near a merry-go-round, there's just no way I would have gotten on. I would have been afraid of breaking it, afraid my girlfriend would be unable to spin it because of my size, and terrified that people would see me and whisper among themselves at the spectacle the fat girl was making of herself.

Being able to run to the playground and play without fear or shame was an experience I really can't describe to most people because they wouldn't understand. I felt joy. That's hard to put into words, but I felt free and happy and normal.

Normal.

Amazing.

My Grandfather Hates Fat People

We buried my grandfather today. He was 87.

I love that man so much.

To me, he is the quintessential 1950s black-and-white tv blue collar family man. He could be a character in so many mid-20th century shows. The gruff but caring, hard-working, decent and kind and disciplined and stubborn and loving man with strong moral fiber and a dogged work ethic. Clean shaven with a crisp white t-shirt and shined shoes, a pocket knife always handy, two fingers missing from the knuckle after a run-in with an automatic saw several decades ago.

Papaw had a great love of Westerns, Johnny Cash, and traveling, and possessed a wealth of colorful stories involving guarding German prisoners of war following WWII. He married the love of his life, worked hard, and provided an idyllic childhood to my father and aunt and uncle.

At the funeral today they gave him a really touching military burial, complete with the guns and Taps and the flag folding and everything else that made me weep. I was also so proud, and incredibly impressed by the number of loved ones who came from all across the country to mourn his death and celebrate his life. The minister mentioned the size of the crowd and noted that even the staff at the hospital had fallen in love with him.

As surly and gruff as he could be, people genuinely and deeply cared about him. I know I loved him so, so much. Even old neighbors who lived on his street half a century ago came to express their love for him.

So many people liked him. He liked all of them back.

But Papaw did NOT like fat people.

He hated fat people and didn't mind saying so. Sure, some of us were privileged to have him like us enough to somewhat overlook our size, but for the most part he held fat people in serious contempt. He had a look that he'd give fat people, a look of disgust and accusation. He didn't like to sit next to fat people. When he ended up in the hospital last month, he would point out the fattest nurses and say, loudly enough for them all to hear, "There's lots of big nurses. I don't know why they're so big. Nurses shouldn't be so fat. Some are alright but they shouldn't take care of other people if they can't take care of themselves…"

The unfortunate problem is the the vast majority of my family is overweight. Like, basically everyone. So I don't know about them, but I'm always acutely conscious of my size around my grandfather. His disgust with fat people rivals my dad's, and that's pretty potent stuff.

Still, I feel grateful that he did get to see me making progress. He was impressed with how much weight I've lost, and winning his approval felt almost as triumphant as winning my father's. 

I'm not religious and I don't know what I believe, but I do know that it's comforting to think that he's up in heaven right now, reunited with my grandmother and my uncle and great aunts and everyone else.

And if heaven does exist, and Papaw is up there watching, I truly hope I continue to make him proud by becoming a less fat person.

100 Posts, Not Quite 100 Pounds

I'm getting pretty fucking frustrated with myself right now. I KNOW I'm sabotaging myself, but somehow I just can't stop eating. It's like the story of my fucking life. I KNOW I'm getting fatter, but I can't stop.

So right now, instead of focusing on what I'm doing wrong, I thought I would take a moment to recognize a few things I've done right.

This is my 100th post on My Weird Luck, which is pretty weird in itself. When I first started back in 2012, I was high on my Weight Watchers success and I needed an outlet to share my successes and my failures.

I never expected to still be writing more than a year later, but I also truly didn't expect to still be losing weight. I mean, okay, I'm not exactly losing weight at the moment, but I'm still on the right road. It's better than it could be. I definitely didn't expect to still be on Weight Watchers. I figured that I would do what I always do...give up, give in, and keep eating. I figured I'd be back over 300 pounds, whining about my weight, wondering why I couldn't do anything.

I wanted to get my thoughts out there, but I didn't really expect anyone to listen. I'm glad some people relate, though. While I know a very small percentage of people actually comment, I do see that quite a number of you are looking. Hopefully reading. Maybe even finding a bit of yourself here.

The post that has gotten the most attention is my pilonidal cyst story, which is really fucking gross BUT I'm glad it's maybe spreading some info that's otherwise hard to get. I know how embarrassing it is, so it's nice to be able to help spare other people from some of the confusion I had.

Anyway, so here's a sort of rundown of where I am, versus where I've been.

I weighed in this morning at 215.4 pounds. That's a gain of 2 pounds since last week (as expected).

I've lost a total of 88.6 pounds, having started at 304 pounds in August of 2012.

When I started writing this blog, I had already lost 26.8 pounds, which brought me down to 277.2 from 304. Since I started writing, I've lost another 61.8 pounds. I also had heart surgery, which was pretty traumatic but also really awesome.

I had really, really, REALLY hoped to lose 100 pounds before I got to 100 posts. I also really wanted to lose 100 pounds before I turn 32 next week. That obviously isn't going to happen, but I'm turning 32 weighing close to 200 pounds instead of close to 300 pounds.

It could always be worse. Hopefully before I get to 200 posts, I'll FINALLY be under 200 pounds. Otherwise...I mean, I'll totally lose it. I'll lose the weight, or I'll lose my fucking mind! Ha!

Happy 100th post!

Ruh Ro, Stomach Flu!

I am home sick today with stomach flu...which was a polite way to tell my employees that I'm violently defiling the bathroom right now.

Unfortunately for me, I'm only experiencing the intestinal distress. My appetite is entirely unaffected. Once the horrible stomach cramps started last night, I felt vaguely nauseated and was a little optimistic that I'd start throwing up along with everything else. But NOPE. I'm actually starving. I'm basically shackled to the toilet at this point, but I am not benefiting one ounce from the helpful vomiting that generally accompanies any stomach bug. I know I should definitely not WANT to throw up. I hate throwing up. Who actually likes vomiting? The problem is that we have a pack of Swiss Cake rolls in the pantry, and I would LOVE to eat them knowing that I would get sick and throw them up so I wouldn't have to count the Points.

Pretty twisted, huh?

I never had the courage for bulimia, nor the discipline for anorexia. I never had any real desire to become anorexic--I love food far too much--but I always thought I could solve all of my problems if I could really binge and purge. My old roommate attended bulimia support group therapy in hopes of picking up some tips and becoming bulimic herself (which, she reasoned, would be easier than, you know, eating right and and working out). It didn't work out for her. Like, at all. She and I both had the binge part down pat, but we just couldn't make ourselves purge.

She was messed up too.

So when I do get sick, as much as I hate it and it makes me cry because I'm a big baby when I'm sick (despite surviving multiple heart surgeries--dumb, right?), I also secretly enjoy being able to eat whatever I want. And sometimes eating delicious stuff and then throwing it up has a dual benefit: everything is out before I digest it, AND it looks so gross that I don't crave those treats for awhile.

Like I said, though, I only have the awful and painful diarrhea. No vomiting. Which means that I'm trapped here, hungry, in the house with Swiss Cake rolls, Smart Ones, hummus and pitas, colby cheese slices, fresh baked bread, crunchy peanut butter, jalapeno pepper jelly with crackers, and a bunch of other shit I'm trying to block out right now.

And I have ZERO weekly Weight Watchers points left for the week, thanks to an ill-advised margarita lunch at work on Friday and a really good queso and enchilada dinner on Saturday. 

I'm trying to keep my mind off of food by immersing myself in A Storm of Swords and cranking up the Fleetwood Mac on my record player, but I'm still making a mental inventory of everything in my kitchen. I can't help it. It's my fat girl mentality striking again.

Being at home alone has always been my time to binge, just like when I would get off the bus and have the house to myself for just long enough to gorge myself on secret Girl Scout cookie stashes or leftover candy hidden behind my bed. When I was in third grade, I would come home and if I was alone, I would immediately grab two cookies (sometimes chocolate chip or Magic Middle, sometimes oatmeal cream pies pulled apart) and cover one with a mound of Reddi-wip, and then make a cookie and whipped cream sandwich, which I would eat in two bites. Now when I'm home alone, I stick my finger in the peanut butter jar and then dip the peanut butter in the fat free whipped cream tub, because I reason that if I eat less than a half tablespoon of peanut butter I don't have to count the points.

So far today, besides the food I actually counted, I've had 5 maraschino cherries, three spoonfuls of fat free whipped cream, 3 Cheetos, half a Ritz cracker, 4 chili cheese Fritos, a lick of honey, 2 Baked Lays dipped in hummus, a pinch of shredded cheddar, 5 semi-sweet chocolate chips, and half a marshmallow. I feel like the queen of eating JUST enough that I don't feel like I should count it. Of course, if you add up all of that shit, it's like at least probably 6 or 7 Points.

But I'm sick so I have every right to stay in denial, right?

Maybe I'll get lucky and end up getting sicker and throw it all up anyway. Then I'd be home another day, though, and faced with the same temptations all over again.

Hopefully I'll just feel better, get back to work, and spend the next two days at my desk, which is stocked with NOTHING delicious. I say two days because...in three days, I go to Key West. For another all-inclusive work trip. Just like the Cancun trip last year. And I know I'm going to gain about 20 pounds in beach cocktails and buffet deserts.

After spending all this time in the bathroom while it's a wind chill of -10 out, though, I am SO ready to go, even if I do end up eating enough for five people!

Haribo Sugarless Gummy Bears: Mmm Laxatives!

I AM GROSS.

Okay?

I admit it. I do gross stuff. I eat gross things. And I really, really like to poop.

If that grosses you out, you should probably stop reading right here. 

I haven't always loved pooping. In fact, I never used to think about it at all. I would poop once, maybe twice a day, and go about my *ehrm* business. Never paid it much mind, as they say.

That was before the Great Constipation Event of 2013. You know, when I ate box after box of Fiber One Bars and completely stopped pooping. It was horrible. I never really wished for poop before then. I had never once hoped for a bowel movement. I reached a new low.

Then, I had heart surgery and things got a little weird in my intestines. I don't know if it was the pain killers or what, but I went from being a daily plopper to a cross-your-fingers-today-is-the-day gross old lady straining on the commode. Not at place I thought I'd be at 31 years of age. I started taking Milk of Magnesia once a week or so (okay, every Tuesday right before my weigh-in on Wednesday) to help clear out my system, but it never seemed to work that well. I still felt all bloated and blocked up.

Recently, I rediscovered what my friends used to call "Poo Poo Tea." It's this Super Dieter's Tea and I had tried it a few times back when we were doing a weight loss challenge at work. This was maybe 10 years ago, and I managed to go from 235 pounds down to 228 pounds. That was a big deal at the time. It didn't last long before I gained it right back, but the one additional thing that I gained from that experience was the knowledge that "Poo Poo Tea" will turn a normal person's gut into a boiling river of hot diarrhea lava. I never knew seemingly benign tea, something so weak and flavorless that I never drank in any version, let along shit-inducing varieties, could wreak such havoc on your digestive track. I had maybe two mugs full back then and never tried it again. Until two or so weeks ago, that is. I bought a box on Amazon, cleared my schedule for 24 hours, and prepared to be amazed at the volume of feces exiting my colon. Unfortunately, not much happened. A little gurgle, a little tummy cramping, and then a decent but solid stool the next day. Hardly the apocalyptic anal nightmare I was expecting. But I was still happy SOMETHING came out.

So when the reviews for the Haribo Sugarless Gummy Bears went viral (the Amazon reviews are here) I was crying and howling with laughter while also thinking, "Hmm...wonder if they really work...?" So while everyone else I know was sharing the hilarity of the comments and taking pity on the consumers, I was clicking "Buy Now!" and hoping the 2 day Prime shipping got them here before my next weigh-in.

They got here, indeed. And passed right through!

I ordered the one pound bag and carefully portioned out 12 bears. To me, they were indistinguishable from the regular Haribo bears. They were awesome. I LOVE gummy bears. I love all candy (except orange candy...or Tootsie Rolls...so obviously I picked out the orange ones). It was really hard to only eat 12 gummy bears. I don't think I've stopped at 12 bears in my whole life. I waited eagerly for the trumpeting gas, the "Niagara Falls through a straw" effect, the total colonic cleanse. Unfortunately, I got a couple gurgles and that was all.

Then my girlfriend started having major stomach pain (she did NOT have the gummy bears). I drove her to the hospital and we got checked in to the ER. That's when my stomach started feeling...well...I was just very aware of my digestive system. A little crampy, a little pressure, a few funny squishy noises. This was around three hours after eating the bears.

We were in the ER most of the night--it turns out she had a really bad kidney stone, which she's never had before. I kept going to the bathroom but not GOING to the bathroom. A little gas (some of it pretty loud) but that was it.

When we got home this morning, I ate another 12 bears. It was around 12 hours after the first handful. This time, I finally started to feel things moving along. I went to bed for a few hours and when I woke up I ate another 8 bears. Within the hour, I was in the bathroom, making progress for the first time in three days! It was great! Nothing loose as reported in the reviews (or, more accurately, no "chocolate rain" as they described it) but a respectable amount.

I weighed myself before and after my bathroom trip: two pounds down!

This afternoon, I'm still a little gassy and I actually feel like I might go again. Here's hoping--I have weigh-in tomorrow, so it would be really nice to empty out a little more of my intestines!

I was really hoping for a more dramatic effect, but I have to say that this is a MUCH more delicious way to get things moving. No more Milk of Magnesia--I just need some sugar free gummy bears and I'm golden! This might become my new pre-weigh-in ritual.

(I am sad that I am so excited about pooping. But I had to share.)

Pilonidal Cysts and My Little Ponies

As someone who has endured the pain of pilonidal cysts, I can tell you that I live in constant fear of having another flare-up.

You can read about my last cyst here, and the eventual resolution here.

This weekend was another cold, slushy, gray blur (the only bright point being my discovery of angel food cake made with a can of crushed pineapple, and the subsequent shame in realizing that I ate four full servings at once). I felt compelled to get out and DO something since, well, it's winter and gross outside but it actually wasn't freezing so I felt pressured to get out of the house and enjoy the relative heat wave of 40 degree weather.

Instead, however, I watched the documentary "Bronies" and then ended up watching the entire third season of My Little Pony: Friendship is Magic. Yes, I'm a dork. I have loved My Little Ponies since I was little, my 80's room (our guest bedroom) is filled with at least 80 original ponies, and this new cartoon has sucked me in despite the slightly slutty re-imagining of their figures. I had watched the first two seasons on Netflix and, after the documentary, discovered that they added the third season. So instead of getting outside and doing something active, I sat on my couch for approximately 48 straight hours.

If you are prone to pilonidal cysts, it is NOT advisable to sit on a couch for 48 hours.

Most of the times that I've had a flare-up have been after a long road trip, after riding roller coasters that hit my tailbone, after sitting for long periods of time in uncomfortable chairs, etc. When I feel like I'm sitting on my tailbone, I immediately try to shift around to take the pressure off. I start feeling like the pilonidal cyst is gathering power and is getting ready to make an appearance.

After this weekend, then, I am being really careful not to lean back in my chair. I am terrified that it's going to flare up again.

I had really hoped that losing weight would make my pilonidal cysts fewer and farther between. I always think of it as a 'fat person disease' and, right or wrong, I hope that once I get down to a healthy weight, I won't have to worry about getting another one.

Of course, a basic understanding of anatomy and biology tells me I'm wrong. I must have a pilonidal sinus and a cavity from past infections, so future infections are always possible.

Still, I can't help but feeling dirty and fat when I think about it. Maybe the pilonidal cyst is like my badge of dishonor--a relic I'll be forced to deal with for all of eternity, for the crime of spending most of my life as a fat person.

I just really, really hope it doesn't flare up this week. Next weekend I am going to try to get my ass off of the couch so I don't have to think about it!

Dying Without Dignity

My grandma might be dying.

She's in the ICU with carbon monoxide poisoning. She's been virtually unresponsive for several days. The doctors are talking tracheotomy or breathing tube, life support, and saying she will never be well again. I'm not sure if she's going to make it.

One of the things that makes me sick is that, if she does end up not making it, one of her last memories will be of EIGHT nurses crowded around her, rolling their eyes, struggling to lift her to make her more comfortable, enduring their disgust and exasperation, while she cries out for them to stop because she's scared and in pain and having EIGHT nurses hovering over her is stressful and humiliating.

I've written about my grandmother and her weight struggles before. My grandma weighed around 460 pounds the last time she was in the hospital. This time, they said she's gained at least 50 pounds of water weight in the past few months, so I'm positive she is over 500 pounds now.

Which is huge. Truly. But, when you think about it, 300 pounds is really pretty far along on the way to 500. I can't judge her for weighing 500 pounds, when I was over 300 and growing steadily. I can see how easy it would be to give in and add a few pounds, year by year, until you finally realize you're 500 pounds. So, like I said, I'm definitely not judging her.

But I CAN judge the hospital staff for making her feel so fucking miserable about it. She's barely conscious right now but when she does wake up, it's because these disgusted nurses are shoving her around like she's a cow carcass. When she woke up long enough to complain about her discomfort in the position she was in, they brought in a CRANE. It was this lift machine that they use for bariatric patients where they strap you in to this harness and hook you into this crane to wench you up above the bed and settle you back in. Picture the thing they used in Free Willy to get the whale to the beach. That's what they tried to use on my grandma.

I've had my own really uncomfortable and shame-inducing experiences with hospital staff. So has my mom. The indignity of those tiny gowns, the grunts and groans of staff members heaving you from one bed to another, the shame knowing that you won't fit into the machines they need to shove you into, the humiliation of hearing "We can't get a good reading because there's too much fat in the way."

It was terrible for me. I still have nightmares about it. It makes me physically ill that my mom went through it. But now that my grandmother might take her last breath at any minute, it's a real, visceral pain I feel thinking of the shame and humiliation Meme has felt before she'll soon slip away.

My grandfather is devastated. He has spent the last decades of his life caring for my grandmother. Leading her to the bathroom and wiping her when she's done, showering her and brushing her hair because her arms are so heavy she can't keep them up long, lifting her stomach to pat her down with baby powder to avoid getting those fat-girl yeast infections. He's devoted 24 hours a day to her care, and now he's blaming himself for not being able to protect her from this. From dying. From indignity.

It's so hard to know that my grandmother is dying. It's much harder to know that she's dying without dignity. All I can do is work hard now to avoid the same fate myself, but what can I do for her? I feel so powerless, and so sad.

Lesbian Pants

I had a few nice moments today.

I was on a fun work trip to reward our top performers and saw quite a few colleagues from other departments--many of them haven't seen me in months, so I was delighted (and a little embarrassed) to find myself complimented throughout the day. Everyone was amazed at how healthy I look, both from the weight loss and from the heart surgery. Instead of hanging out at the snack table guiltily devouring cookies and pumpkin pie cheesecake, I talked to people about hiking, camping, bicycling, and basically being a normal adult. It was pretty awesome!

I also was really happy to be able to get on and off of the bus without feeling like I was squeezing down the aisles and hitting people's elbows with my stomach and ass. What a difference.

Plus, when I went on this same trip last year, I could barely walk around. I was so fatigued and winded from the heart and breathing problems that even walking from the bus to my table inside was difficult. This year, I couldn't wait to do more. We played paintball last year and, although it was totally totally fun and I really really love shooting at people, I ended up having an asthma attack merely walking out to the starting line. I spent the entire game last year wheezing and desperately hiding behind a wall while my face mask fogged up with my heavy breathing. I had to sit out the second game, and barely survived the third. This year...totally opposite! I was active, I ran behind targets, and I (along with my assistant manager) ended up winning against three guys! I'm a really good shot, and being able to scamper around the game site this year gave me much better vantage points from which to totally demolish the guys! I did get hit in the face (thank goodness for masks) but it was still awesome.

But one of the greatest things was my pants. I've had this pair of camouflage pants for years and years. I call them my lesbian pants. I wore them in college when I was going through my militant phase, and they always make me feel cool. They're baggy camo cargo pants that hung low on my hips, and they're so worn that the bottom few inches have torn away. They're splattered with paint and starting to get little holes, but I love them and used to wear them all the time. When I finally gained enough weight that I couldn't wear them, I kept them in my closet hoping that one day I could put them on again. Last year, I had only been on Weight Watchers for three months when I went paintballing but I decided to try on the pants...and they fit! They were tight, but I could wear them and felt like a badass again.

I wanted to wear them again this year because, well, I don't exactly have many paintball clothes nowadays and what's better for paintballing than camouflage? So I put them on this morning and they were TOO BIG! They hung down on my hips like they used to, and maybe even a little more. I wore them anyway with a tank top, long sleeved shirt, fleece vest, and hoodie (it was cold and I wanted lots of layers in case I got hit). I ended up having to keep one hand on my waistband the entire time I was paintballing because my pants kept slipping off! Like, my pants are literally FALLING OFF OF ME. That is so amazing. Pants that a year ago I was celebrating fitting into are now too big!

I'm sure I can find some way to repurpose the pants, but I don't think I can wear them again--at least not without a belt! What an awesome feeling.

Work, Bitch

Apparently my cardiac rehab is working--I not only feel stronger and healthier, I also lost 3.4 pounds at weigh-in this week. Nice!

I'm now down to 215 pounds even, down 89 pounds from my starting weight of 304 last August. 89 pounds...that's pretty crazy. That's more than my 9 year old nephew. That's more than my old Rottweiler. According to the list, I'm one pound away from having lost a NEWBORN CALF. Whoa.

As much as I hate going to rehab three times a week, I have to admit it's kind of nice. It's strange to have basically a regular gym schedule. And they don't just turn on the machines and let me go--I have to be hooked up to the heart monitors, they come and take my oxygen and heart rate and blood pressure while I'm working out, and every session they try to increase my time, my incline, my resistance, etc. After my heart surgery I was scheduled for 18 sessions, so I think I still have around 4 weeks to go.

Yesterday, though, was TOUGH. I kept bitching about the stationary bike (I'm not used to working the fronts of my legs, so it makes me tired really fast). Well, after they were nice and tried to switch things up for me, I wanted to go back to the stationary bike so badly! They had me on something called an Arc Trainer. I guess they're all the rage but I've never even seen one (obviously I don't exactly frequent a gym). It's basically like a nightmare mashup of a stair climber and an elliptical machine. It's fucking horrible.

The nurse had me start the Arc Trainer and I seemed to get the hang of it. Thinking I would be fine, she set it for 20 minutes and said that I didn't have to do the full 20 but just see what I could get through. Then she went to go make her rounds to the other rehabbers. After about 60 seconds, I was sweating and panting and my butt and hips were screaming in pain. After maybe three minutes, I thought I was going to pass out. I slowed down long enough to turn my playlist to "Work Bitch" (I love Britney, especially when working out now, and ESPECIALLY this song) and I powered through. I got to five minutes and started looking around for the nurse, trying to make eye contact. After about seven minutes, my chest was burning like it hasn't burned since before my surgery. I didn't want to stop and admit defeat so I kept going, but the machine started beeping some kind of heart rate alarm. I kept going, gasping for air, glaring straight ahead, determined and frustrated and possibly dying. Finally the nurse rushed over and told me my heart rate was way too high (duh) and had me stop. That was 11 minutes of pure hell. Seriously, it's like a torture device with fancy foot pads. So they put me on a range limiter for another 10 minutes as a cool-down and then I got to go home. In the car, my lungs and chest were still on fire and I was coughing up phlegm just like before my surgery when I was in a constant state of cardiac asthma.

Anyway, I survived and I told them I am determined to try it again on Monday. Just maybe for five minutes instead. My legs and ass are sore, and I have hip muscles that I've never felt before. Ouch. What am I going to do after my rehab is over? I don't have anyone to push me like that, and I don't know if I can push myself like that. Working out sucks but...well, if I keep seeing results at weigh-in, maybe it will be worth it after all.

Anal Volcano

We have eruption!

My pilonidal cyst finally burst. Thank goodness. I was just on the verge of going to the emergency room--the pain was moving beyond what I could handle. My thoughts were cloudy, my breathing was shallow, I couldn't stop trembling, and the pain was just overwhelming.

When I mentioned that I have only sought medical treatment twice for my cysts, that was true...but I've come really, really close just about every time. It seems like just when the pressure and pain reaches its absolute worst and I feel like I can't possibly live another moment longer, just when I begin to doubt myself and think that maybe I do need to go to the hospital after all, just when I'm making a list in my head of what items I need to grab before asking someone to take me to the hospital, that's when the cyst finally bursts. Like once when I had waited a week in complete agony until I broke down and called my mother--she came over waited while I took a quick shower since I hadn't really moved all week...while I was in the shower, I heard a splat and felt relief and saw that the cyst had ruptured with such force that it covered the shower wall behind me. My mom heard me gasp and came to the door, but then started gagging at the smell. I sent her home. No hospital needed.

So I was at my breaking point again this time, leaning forward on the couch and looking around the room to decide what I needed to shove into my purse before I asked my girlfriend to drive me to the ER, when I suddenly felt relief, my head cleared, and I felt warm, sticky, wet grossness spreading across the back of my pants.

I gasped, jumped up from the couch, and fled the room. My girlfriend instantly knew what was happening and I could hear her cheering as I slammed the bathroom door behind me. I turned on the water and jumped in the shower fully dressed, knowing that the cyst fluids were already seeping through every layer of my outfit. The smell was overpowering, even before I undressed. It smelled like blood, pus, infection...super super gross. And once I started peeling off layers and more pus gushed out, the smell grew. As bad as it smelled, though, I knew that it was the putrid smell of relief.

As usual, I pushed and squeezed (gently) until I couldn't get any more out. After washing everything, I was left with an inflamed but essentially empty pus pocket and the raw, broken skin from which the fluid had burst. And as usual, I sprayed it with Bactine, taped on a bandage, and returned to my girlfriend where I promptly fell asleep to make up for the past several sleepless nights.

As I said, this is the same cycle that happens every time. It gets more and more painful until I don't think I can live through one more second, and then it explodes and grosses me out and it's fine. It will continue to seep a yellow liquid and some blood for a few days, and if I'm not careful it may swell up again, but now that the skin is broken it will burst more easily for the next month or so. Thank goodness. I was so close to going to the hospital, and that's the main thing I wanted to avoid. Oh, that and not getting the septic bacteria into my blood stream. That's important.

This is just one of those other awful 'fat girl things' that I suspect more people experience than admitted. This is also something I really hope just 'goes away' as I lose more weight. I've only known one small person with a pilonidal cyst. Maybe I'll just magically stop having them? I don't know. All I know is that I'm so thankful I'm not in pain right now, and I'm so grossed out by this oozing sore on my butt crack. At least I survived this one again, and it again gave me perspective: my heart surgery incision pain is basically nonexistent now, especially in comparison!

My Pilonidal Cyst Story

Gather round, children, and prepare to be amazed and revolted by this captivating tale of...a cyst. A really big cyst. A really big, gross, humiliating, excruciating, recurring cyst.

When I had heart surgery in August, I expected to be in a lot more pain than I was. However, after approximately a decade of dealing with one of the most painful and embarrassing medical problems imaginable, the surgery pain seemed to pale in comparison. No matter how much my incision hurt, or how much my cut muscles ached, I could remind myself that the pain of my cyst during a flare-up was so significantly worse that my surgery didn't seem so bad after all.

My pilonidal cyst is something I try to keep a secret from as many people as possible. It's just so awful. I already bared all, though, while oversharing about my topical yeast infections, so I might as well throw this out there. I'm having a flare-up right now, so it's all I can think about.

There is not much information available about  my kind of pilonidal cyst because everyone's cyst experience is different. I suspect that people with issues similar to mine just don't talk about it. So I'm going to talk about it. Prepare to be grossed out. I was going to post a picture of mine but it's still too embarrassing--just try a Google image search instead, and look for the most disturbing and painful unpopped pilonidal abscess possible.

At the beginning of my college summer vacation when I was 21, I started feeling like I had bruised my tailbone. I was drinking all the time while also taking Paxil for my Post Traumatic Stress Disorder (following a massive fire I was in and in which I lost all my belongings). I was blacking out multiple times every week, so I assumed it was entirely possible that I had fallen down drunk. My tailbone kept getting worse and worse, though, and after a week or so I could barely sit down. That's when I felt the lump rising. It was at the top of my butt crack, slightly to the right, and I could feel a squishy bump about the size of a walnut half under the skin. It was incredibly tender and hot to the touch. I tried looking it up online but didn't know how to describe it, so I didn't get any useful results.

After a week or so of increasing pain, it came to a head one night while I stayed up shaking and sweating. I think I was probably going into a state of shock or something. No amount of alcohol could dull the pain, and there was no position in which I was even remotely comfortable. I couldn't sit, I couldn't lie down, I couldn't even stand. I remember crawling to the bathroom that night because I couldn't get up, and I passed out from the pain. I woke up on the floor in a pool of sweat with the cyst bigger and redder and hotter than ever. The school clinic was closed for the summer and I didn't want to pay to go to the hospital, so I didn't know what to do. I was so scared. As it grew, I wondered if it was cancer. Or some kind of boil? Or like a chip from my tailbone broke off, lodged itself in my muscles, and caused an infection?

After I woke up on the bathroom floor, I tried exploring it more. It hurt too much to poke at it, but it really felt like it was a small balloon filling up with something, and that if I could just break through the skin it would come out. I gathered the equipment I could think of: a razor blade and a thumb tack (I couldn't find a needle). First I tried the razor blade. It was hard to see but I just numbed it with ice and tried slashing across the top with the razor. I hoped the infection was close enough to the surface that it would burst and I would be fine. Unfortunately, the infection was deeper than I thought and the razor only succeeded in hurting me. I tried the thumb tack next, but the pain was too bad for me to apply much pressure. I could get the point in, but it didn't go far enough in to help.

I stayed up all night, trembling and fighting to stay conscious. The next morning after fainting in the bathroom happened to be my first day as a summer intern at the library. I made it to the library with my roommate/best friend (the one I've mentioned who died so tragically and ripped my world apart) but I was literally standing up while driving there--I couldn't put my butt on the seat of my truck, so I held myself up with the steering wheel and drove as carefully as I could. Seriously, though, driving while standing is not a good thing. We made it there but just barely.

When we got to the library I hobbled in, still unable to walk or sit and wearing a skirt because pants would touch the cyst. We began the first day tour, during which I was still shaking and sweating and thinking of nothing but the mind-numbingly intense, throbbing, unrelenting pain. About fifteen minutes into the orientation, the pain just suddenly stopped. I could take a deep breath finally. I stopped shaking. My head cleared. I felt blissful relief.

Then I started smelling this terrible smell. It was like a container of week-old turkey salad (the kind with dark turkey chunks and mayonnaise) that was just pulled open. Just a strong, meaty, gross smell. I couldn't figure out what the stink was, but I was so relieved by the  overwhelming absence of pain that I didn't really care.

My best friend then grabbed my arm and he whispered for me to go to the bathroom. Thinking maybe I had food in my teeth or had started my period, I excused myself and went to the restroom. As soon as I got in the stall, I pulled down my jean skirt and felt hot liquid on my legs. I touched my butt with my fingertips and was horrified to feel them slipping in thick slime. I lunged out of the stall with my skirt down and locked the deadbolt on the main door (the bathroom was empty besides me). The smell was even worse with my skirt down, and I began frantically wiping myself with paper towels. There was pus and blood everywhere. It looked like someone had been murdered. Or like I sat on a blender full of animals and turned on the blades. Just totally disgusting. And it wouldn't stop coming. As I gingerly pushed around the lump, more and more pus and blood oozed out. It was this foul brown gurgling stuff, and no amount of paper towels was going to work.

I cleaned myself up as much as I could and fled the library, praying that no one would see me. I made it back to the apartment where I could see everything better in a mirror, and just kept pushing to get more and more nasty brown goo out of me. The sticky red blood mingled with the hot white pus to make a thick marbled brown substance, and the week of festering had made it smell like rot and death.

I was not in any significant pain from the moment it had burst in the library, so I could easily press my fingers around the edge to make the liquid pulse out. It took hours it seemed before I had coaxed all of the infection out, and the skin felt loose over the now-empty cavity. I did end up going back to work the next day and told everyone I had just thrown up, but I suspect they knew something was more awful had happened. I told my best friend that it was an injury from my tailbone and he was kind enough to pretend to believe me.

I dove into researching it more and finally found the most likely culprit: a pilonidal cyst. That means 'nest of hair' (I KNOW! So gross!) and I have read many comments claiming that the pain of a pilonidal cyst flare-up is worse than the pain of natural, undrugged childbirth. I believe it. The pain is intolerable, and the shame is unbearable. There's lots of great information out there about what it is (one of my favorites is the Pilonidal Support Alliance), but no one is really truly certain what causes it or how to fix it.

There are certain factors that are common amongst sufferers: they are mostly male, mostly overweight, and mostly very hairy. Poor hygiene, sitting too long, and not shaving can also affect your chances of having a flare-up. So, yeah, not exactly something I want to share: hey, everyone, I have a totally gross cyst that comes from being fat, lazy, dirty, hairy, and not a lady. So yes, this is another one of those gross fat girl things. Not all fat girls get them, but I don't think I would have it if I wasn't fat. I think my ass fat makes my butt crack deeper, which causes more hair and stuff to get caught in there, and apparently led to my current situation.

Now, some people have pilonidal sinuses, which cause them to weep out pus and blood, but they don't get the abscesses or cysts because the infection isn't trapped. Some of those people have to wear diapers because so much nasty stuff leaks out of their butt crack. I am here to tell you that I would MUCH rather have that than have my cyst. Instead of having a sinus, or a tiny hole that allows it to drain, I instead just collect the infected fluids in a cavity between my ass cheeks. This cavity gets bigger every time I have a cyst because the infection tunnels into my tissue, and because I don't have a sinus to drain it, I have to wait until the skin is stretched so incredibly tight because of the sheer quantity of pus and blood that the skin bursts open and sprays infection all over the place.

After that first eruption (my best friend and I called it my 'anal volcano'), I ended up getting a flare-up around once a year. It was usually a week of total torture--unable to move, unable to even wear jeans because of the pain, unable to go to work or drive or sleep. I kept it a secret from everyone I could. Sometimes it ruptures in the most awful places, like a gas station bathroom or on vacation. It's terribly inconvenient and ridiculously painful, but the surgery to correct it is also really painful, really awful (they sometimes sew a 'marsupial pouch' which sounds so so so gag-me-gross), and totally not guaranteed to work. Some people have had the surgery over and over and the cysts just keep coming back.

I have had probably 10-12 cysts since then, and I have taken care of most of them myself. I've spent a decade honing my care. I learned that antibiotics won't help, and nothing really kills the pain except getting it to pop. Sometimes if I take enough hot baths with Epsom salt the cyst will weaken and burst. Sometimes if I alternate a really hot heating pad with an ice pack, the abrupt change in temperature will cause it to rupture. Sometimes I make a compress of crushed garlic that is said to thin the skin and help the infection. The bad part is that, even with these remedies, it still won't burst until it's ready. I have to honestly feel like I'm dying for around 48 hours (that's after a week of intense but not near-fatal pain) before anything can make it explode. And sometimes they just never do burst--luckily, I have only been forced to seek medical attention for two of them.

Once the emergency care clinic doctors sliced me open with a scalpel but didn't go deep enough--some blood oozed out, but the cyst did not burst. I was in more pain from the scalpel cut, but after another day or so of the infection brewing, the cyst was stretched so tight that the weakened skin from the incision split open and it burst. Whew. The most recent time was also the most horrible. This cyst had been going on for almost two weeks, and it was huge and purple. I had gotten desperate and had tried cutting it with razors, scissors, needles, tacks, and even a syringe. Nothing helped. It was around the size of an egg, and I couldn't do ANYTHING. No walking, so sitting, no lying down. I had to miss work for a couple days and I was out of options. So I went to the emergency care and the doctor there was clearly horrified and disgusted. He could barely speak, but told me that it was beyond what he could care for, and told me to go straight to the hospital ER. He even called ahead to help me get in. When I got there (I rode in the back seat, laying down on my stomach and crying...there was no way I could sit) they gave me a pain killer but it definitely did not help. The ER nurse made me lie down and she just cut it right open. I felt the liquid gush between my legs and all over my back, but she didn't stop. Instead of allowing me that moment of relief, she told me that she had to scrape out the pockets of infection or it would just come right back. She stuck something in the gaping hole and I couldn't stop screaming. She scraped and the way the small pockets burst, it made me imagine them as the pulp inside an orange--those fat little envelopes full and ready to pop. But she just kept going. And going. I like to think I have a pretty high tolerance for pain after dealing with this for so many years, but she pushed me to new limits. I didn't think it would ever stop.

Finally, she finished scraping and started cleaning me out. That was horrible but not quite as soul-shatteringly painful. Then she packed the hole full of gauze and told me to have it removed in two weeks. When I got home, I couldn't even look at it. The single time I glanced at it in the mirror, I saw the bruised and angry purple flesh bulging around a curly gauze tail that was pink with blood. I felt more like a pig than ever. When I went to the doctor to take it out, I had to hold onto the exam table while he pulled it out--it must have been three feet of bloody gauze, and the feeling of it being pulled out of my body made my skin crawl.

Since that last ER experience, I have tried desperately to avoid letting my cyst get that bad. If I get any skin that feels like a scab I can potentially peel off, I do, because I feel like it makes the rest of the skin thinner and therefore easier to burst. I clean there regularly, I avoid sitting for long periods on my tailbone, I never wear thongs, and any time I start to feel tender around my tailbone I immediately start spraying Bactine and applying hot and cold presses.

Around a year ago, I had called into work and while explaining to my boss why I couldn't come in, I lost control and started sobbing hysterically into the phone. The pain and embarrassment were just too much together. I'm glad it happened, though, because she was able to introduce me to something that one of her former colleagues had used for the same issue: ichthammol ointment. It smells like tar and stains everything and makes an enormous mess, but it helps thin the skin and, instead of bursting, the cyst just kind of starts leaking out after a couple days. I've only used this treatment twice, but each time it worked like a charm. Since it didn't burst, I don't think all of the infection got out either time, but it got rid of my pain so I can't complain. I can't believe more people don't know about this. I wish I had found out about it years ago--it would have saved me some serious pain. I mean, pain so bad that I can't help but think about killing myself. Hopefully someone searching for a way to help their pilonidal cyst will stumble across this page and try the ichthammol ointment. It's been a true miracle for me, and I haven't even had a cyst flare-up for almost a year. The ichthammol is super cheap and I just smear it on and then cover it with a small cut up square of washcloth held in place with medical tape.

But...now it's back. And now the ointment isn't working. And now I'm terrified. Since my recent heart surgery, all of my doctors have stressed over and over how important it is to keep myself from getting any kinds of infection. Anything, even something as small as a cut in my gums, can potentially lead to bacteria getting into my bloodstream and forming on my brand new heart valve. So I'm really really scared. It's 5am but the pain is so bad I can't sleep. I'm sitting on a heating pad with ichthammol ointment smeared on my butt, but it's not helping. I had to leave work early for the past two days. I almost passed out when I drove over a pot hole on the way home. I went to an art gallery opening tonight but we had to leave because I was so afraid someone would brush against my butt and I'd faint or scream. I keep accidentally bursting into tears, and it hurts to do anything. Since the abscess is basically between my butt cheeks, every time I move my butt cheeks squeeze around it and it feels like torture.

I had hoped that losing weight would also let me lose this cyst. Since it's what I consider a fat girl problem, I thought maybe, just maybe, it would disappear. Enough hard work and I wouldn't have to deal with it again.

So I'm doubly sad that I'm still facing this awful thing. And I'm so scared. I don't want the infection to reach my heart. I'm hoping it will burst on its own. Otherwise...I might be back in the hospital tomorrow. I'm not one for prayers, but I'll be praying for a miracle right now.

Update: It burst! Woohoo! Ichthammol success again!

A Whole New World

So...it's been awhile.

I'm kind of a different person now.

Weight-loss wise, I'm still trucking along slowly but surely. Not much has changed there...I'm struggling with sweets, craving all kinds of shit, and compulsively tracking and weighing my food to keep within my daily Weight Watchers points. It's rough, yeah, but after more than a year on Weight Watchers, I feel like I'm sort of a pro.

Plus, I'm now at 219 pounds as of yesterday's weigh-in. That's 85 pounds down from 304! It's been a little more than a year (I started last August) and I'm still doing the 1-pound-up-2-pounds-down dance, but it's working.

The REAL change, though, is that I have a new heart valve. And this one WORKS! If you're not familiar with my health struggles, here's a recap: in 2007 I had a root canal that, unbeknownst to me, introduced some bacteria into my bloodstream. I became extremely sick and was hospitalized in December of 2007 with streptococcus, double pneumonia, bronchitis, pleurisy, severe dehydration, malnutrition, anemia...not a pretty picture. The antibiotics didn't work, I almost died, and the bacteria turned into endocarditis on my tricuspid valve. Little bits were flecking off into my lungs and causing major breathing and infection problems and nothing helped. I eventually had open heart surgery in late January 2008 at the age of 25. While recovering, I caught mono and within a few months, the artificial heart valve stopped working. It was frozen in a half-open position which allowed blood to pass but which caused serious problems for me. I couldn't do any of the activities I used to do. I'd get out of breath walking up a single flight of stairs, I couldn't run or play, and my asthma got worse and worse. I rapidly gained 50 pounds and stayed that way, fat and sick, for about 5 years. Last August, I joined Weight Watchers hoping to lose some weight and become active again. I lost weight, but wasn't active. Walking was still nearly impossible for me. I was thinner but still miserable and totally sedentary.

This summer, things got worse. My oxygen was dropping down to 80% just walking out to my car (I started keeping an oximeter with me to check my blood oxygen because I always felt like I was just about to drown and could never catch my breath). My resting pulse was around 130 beats per minute. Those are not the signs of a healthy person. It became so bad that I stopped going to meetings at work because I couldn't walk there (I'm a department manager, so this was not so great for my job). I stopped making plans because I couldn't go anywhere.

Then I went to Bonnaroo in June. I've been to Bonnaroo 5 times before this year and each year since my surgery was a little more difficult. After losing so much weight (around 70 pounds at the time), I though I could handle parking in the 'normal' campground instead of the handicapped area. WRONG. We missed shows because I couldn't get there, it took us 2 hours to walk to Centeroo, and I was thoroughly miserable the entire time. It was the saddest Bonnaroo ever...which is even sadder because PAUL FUCKING MCCARTNEY WAS THERE and I was too busy just trying to breathe and not die to even enjoy the show!!!!!!!!!!!!

Anyway, when I got back from Bonnaroo, I started going to my doctors and asking for tests. I needed to know if there was something else going on. My doctor and cardiologist and nurse practitioner checked my blood, my urine, did x-rays, EKGs, ultrasounds, etc. I'd been feeling like shit for 5 years, but it was like since I had lost 70 pounds, they were taking me seriously for the first time. The cardiologist said, "With how much weight you've lost, you should be feeling great." So instead of passing my symptoms (difficulty breathing, high pulse, severe fatigue, exercise intolerance, dizziness, etc) off on my weight, they started searching for real answers. I had them check for thyroid issues, vitamin deficiencies, lupus, internal bleeding, hepatitis, everything I could think of that would explain my problems and why I wasn't getting better.

They finally did a tranespophageal echocardiogram and determined that very little blood was actually flowing through my non-functioning mechanical valve. A cardiac surgeon met with me and wanted to try replacing it again. I was terrified. Seriously terrified. I mean, it was bad enough the first time. I wasn't sure if I could deal with the pain, the scars, the risks, missing work. However, I'd worked so hard to lose weight that I felt like I'd made a commitment to my health and I should try the surgery if they thought it might make my life a little better.

So I scheduled the surgery. I had to wait one month, and it was a fucking horrible month. I made all of my FMLA and short term disability arrangements, assigned my work duties to my employees and assistant manager, and made thorough user guides for all of my job responsibilities. To be honest, I was fully expecting to die during surgery. I spent that month making my final arrangements, writing out a will, gathering information for my cemetery plot, and saying goodbye.

The surgery day came and when they strapped me to the table in the operating room, tears were streaming hot down the sides of my face. I knew it would be the last time my eyes would be open.

But around 12 hours later, my eyes did open again. I made it. Well, just barely. That first night, my pulse kept dropping down to the low 40s and they had to put in a pacemaker to get me regulated. But when they turned off the pacemaker the next day, my pulse was steady. My blood pressure was good. I was alive.

They replaced the broken mechanical valve with a bioprosthesis from a cow. As a vegetarian for more than a decade, I was really upset about using a cow's heart. But I asked my friends and family and Facebook to have a Beef Free Day on the day of my surgery--I was overwhelmed to find out how many people committed to not eat beef that day. It made me feel better. We saved part of a cow, and part of a cow saved me :)

The surgeon was horrified by the condition of the mechanical valve. It's not like you can just peek in and see how your heart valve looks, so no one really knew how bad it had gotten. The surgeon was so blown away he took a picture of the valve to show my family...brace yourself for something seriously nasty. The mechanical valve they took out is below (shown from both sides).

Yeah...no wonder I felt like shit.

Within maybe 48 hours, I was able to get up and walk around. And I COULD walk around! Even with the bandages and open incisions, the IVs sewn into my skin and the telemetry wires coming out of every opening in my gown, I could walk. Once they got the catheter out, I started walking. That first day without the catheter, I walked halfway around the cardiac ICU floor of the hospital. I could not have walked that far before the surgery! The next day, I made it a full lap in the morning. Then I made another lap after lunch. That day, I ended up walking 6 laps around the hospital floor. I NEVER would have made it 6 laps around the hospital floor before the surgery! Seriously, I can't really express just how bad it was before, and how fucking amazing it was after. The fourth day, I walked 20 laps around the hospital floor! The patients in the other rooms all watched me and the nurses encouraged me as I shuffled around over and over, clutching the heart-shaped pillow to my chest incisions. They have markers every 25 feet along the wall, and one lap is 500 feet. 20 laps is 10,000 feet, which is nearly two miles! Sure, it took me all day...but I walked TWO MILES! If you've read my other posts, it took me four days to walk a single mile back in March. Two miles in one day is a total fucking miracle for me.

The fifth day, they sent me home!

I still had a long recovery ahead of me. They had to cut a bunch of muscles and nerves to get to my valve, so I can't lift more than 5 to 10 pounds. I have a total of 8 incisions (two of them very large) and 7 holes from the pacemaker, IVs, etc. I've been off work for just over a month now. But I AM RECOVERING.

My first week home, I had to have someone with me 24/7 in case anything went wrong. My amazing girlfriend, who had stayed in the hospital with me the whole time (just as she did in 2007 and 2008) took care of me when I got home. That first full day home, I asked her to take me for a short walk. We got dressed (in my sexy Velcro bra the hospital gave me, and with the heart pillow held tight against my chest) and we walked around outside for 10 or 15 minutes. Here's the crazy part: that was the first time we'd walked anywhere in the neighborhood in the 4 years that we've lived here.

After that, I started walking a little more each day. Some days the pain was bad and I could only do 10 minutes, but I still made myself walk 10 minutes where before, I would have just stayed on the couch. Then the neighborhood suddenly seemed small. We started going to parks near us. After the first couple of weeks, we even tried hiking. I went from not being able to walk from my car into my desk at work, to hiking for an hour without stopping.

Last weekend, we hiked for 4 hours and it felt completely amazing!

I've been eating a lot while I've been at home on short term disability so I'm not losing weight any faster, but I'm getting stronger. I feel healthy. I feel GOOD. I feel like the world has opened up to me. We went to St. Louis for a funeral and I actually felt guilty about not walking during the day we spent in the car. After the funeral, we went to the St. Louis Zoo and walked around for 2 hours. Before, we would have shuffled from one bench to the next and missed half of the zoo. This time, we went on every single path...AND we parked in the free parking down the street instead of wasting $15 for a close spot.

It really is a whole new world for me. There's so much I want to do now. I'm still in pain and I'm still healing, but I should be returning to work next week. Now I'm already planning to take advantage of our on-site gym and personal trainer for the first time since I started working there. I've completely stopped taking my inhalers because, as it turns out, I don't even have asthma...all of my breathing problems were cardiac-related.

Also, my cardiac rehab starts tomorrow. I'll slowly learn how to move my body again. I'll get faster, and stronger, and healthier.

I couldn't be more excited.

Bonus: here's a picture of me before Weight Watchers, and a picture of me last week. I still have a long way to go, but look at the difference! I might need a new cardigan soon!

Tagalong Plateau

LOSING WEIGHT SUCKS.

Seriously.

This is not fun. Well, it would be more fun if I were ACTUALLY LOSING WEIGHT. Instead, I've been losing and gaining the same pound for a month and a half. A MONTH AND A HALF! I am the same weight that I was on 2/20, even though I have been tracking everything religiously on Weight Watchers.

Is this was a plateau feels like?

I wouldn't know. I've never lost enough to even hit a plateau. Or when I did stop losing weight for even a week or so, I'd just give up and eat what I want. Like, fuck it, right?

But I'm really trying not to go that this time. I'm really trying to stay focused on losing weight, but it's SO FUCKING HARD.

Like Easter. Everyone else enjoyed Easter baskets full of candy and chocolate, or stuffed their faces with banana pudding and my grandma's special eclair cake. I measured, weighed, and tracked every morsel and...I didn't even get an Easter basket this year :( Yes, it's sad that I am 31 and this is the first year I have not gotten a basket. But STILL! That's sad.

At my weigh-in yesterday I think my meeting leader saw my frustration (or maybe the "FUCK!" that flew from my lips tipped her off) and tried to talk to me about some strategies. I told her I'm still nervous about working out, with my stupid non-functioning heart valve and all that, so she tried to find other sources of my weight loss stagnation. Not drinking enough water (it's true), not meeting my healthy guidelines for oil (well, if I have to choose between one Point of oil and one Point of chocolate, who do you think wins??), and then said something that made me want to laugh and cry at the same time (ala my favorite movie quotation, courtesy of Steel Magnolias: "Laughter through tears is my favorite emotion..." but this was NOT a good emotion)...she asked if I had stress and said stress can make your body hold on to fat. I was like, "HA! Okay, so I have no hope?"

I mean, I have super high anxiety anyway. All the time. I take Xanax to manage it but it honestly doesn't do much good. On top of that, I just got a promotion at work last week so now I'm in charge of about two times more than I was before...and I was already in charge of a LOT. So if stress is going to keep me from losing weight, I should probably just throw in the towel now because this belly is not going anywhere.

But I won't give up. At least, not yet. She also gave me a few other suggestions: try eating a bigger breakfast (I've been eating a container of yogurt every morning for around five years now, so it makes sense that my body would get used to it) and a smaller supper (I stuff my face at supper because that's the time I have to cook big delicious meals, but if it'll help I will try).

Still, something's gotta give. Last week I lost .8 pounds, down to 249.4. This week, I gained 1.2 pounds, back up to 250.6. I've still lost over 50 pounds since I started out at 304 pounds in August, but this past month and a half has been really discouraging.

I hate missing out on good food. I know that in the long run I'll be happier and healthier and missing out on Girl Scout cookies for one year isn't going to make my big list of Life Regrets when I'm on my death bed. But I titled this post Tagalong Plateau because that was actually the name of one of my favorite cats growing up. I was a Girl Scout for 13 years and Tagalong Plateau is the name of a landmark reached by the Girl Scouts in some really weird old cassette tape I used to listen to before bed (which I sadly can't find anywhere and of which I can find no reference on the almighty Google). All of my cats had Girl Scout cookie names. I fucking love Girl Scout cookies. This year? ZERO cookies. I couldn't trust myself to buy a box because I totally knew I would eat the whole thing. I gave a donation to our local Girl Scout Council instead (partly to assuage my guilt over turning down all the cookie offers, and partly in support of their acceptance of gay scouts, which is a really big deal to me). But I'm SAD I didn't eat a Girl Scout cookie, and I STILL gained weight. Like, maybe I should have eaten a whole box just so I could point my finger and say "There, yep, that's why I gained weight...whole box of delicious cookies. Worth it." Instead, I'm looking back through my month's food tracker thinking "Wow, I made some really healthy choices and ate a ton of veggies and really cut back on the cheese and chocolate and all things delicious...so why the fuck did I GAIN? AGAIN?!"

I'm not giving up, but I'm getting more and more tempted to just go sit at a Golden Corral and stuff my face until they drag me away from the buffet with a trail of mac n cheese and gummy bears behind me...

Gross Fat Girl Stuff

Time to talk about some gross stuff.

I've still been having serious bathroom issues...like, I haven't had a really good poop for a week. It's awful. I never thought I'd miss pooping so bad. My stomach is all cramped up. I even tried a fucking enema, for god's sake. It was the grossest thing that's ever happened to me. UGH. I'm still all blocked up. Which also means that I haven't lost any weight. I've stayed steady since last week (hovering right around 250-252) but I think if I could just go to the bathroom like a normal fucking person, I'd probably flush away five pounds or so. Yuuuuuuck.

Sadly, that's not the gross stuff I want to talk about.

I want to talk about...yeast. Specifically, yeast infections. More specifically...topical yeast infections.

I thought that losing weight would eliminate all of my infection problems, but obviously I'm still 250 pounds so my stomach fat still hangs down, so I STILL get nasty yeast infections. Not in my lady parts. Under my stomach. Raw, red, painful, burning, STINKING yeast infections.

I know when they're going to start because I can smell that smell. When I was in the hospital before my open heart surgery, I was really sick for a long time and I couldn't drag myself to the shower so I would just kind of wipe myself down (okay, aside from that one against-my-will sponge bath that scarred me for life). After a few weeks of not really bathing, I started smelling it. That gross, sickly sweet smell that's like no other smell on earth. The kind of smell that, once it enters your nose, doesn't leave for hours.

So I'm really self conscious about it. I'm a fanatical baby powder user. I pat every fold and roll with baby powder pretty much every day, and I never go outside and sweat without some baby powder dusted between my legs and under my boobs. But this morning I smelled that smell, and I knew I had an infection. I lifted my stomach and saw that angry red shiny skin. I wiped it with some tissue paper and it was wet with infection seeping out. I wiped again and the pain was so sharp and raw that I had to stop. I just coated myself with baby powder and then, when the powder immediately became wet over the wound, I rubbed triple antibiotic ointment into it and then patted on more baby powder.

While I'm sitting here I can feel it. It's gross and it hurts. It smells. It makes me feel dirty. It makes me feel nasty.

And more than anything, it makes me feel anxious for the day that I've lost enough weight that I don't have to lift my stomach to powder under my rolls.

Speaking of which, weigh-in tomorrow is not going to be fun tomorrow unless I manage to go to the bathroom. Fingers crossed.

The Elephant In The Bathroom

I can no longer say I'm under 250 pounds--my weight bounced back up for a few days and I was at 251.6 at Wednesday's weigh-in.

However...I think I'm back down to 248 or so today, and hopefully still coming down.

This is really embarrassing but I feel like I need to defend myself for getting back over 250 pounds.

I think I was full...of...poop. There, I said it.

My stomach hurt for a couple days, and I was feeling really, really bloated by Monday night. I realized that I hadn't been going to the restroom like my usual, "regular" self (if you know what I mean). So I tried to figure out what was going on, and I remembered that my girlfriend had brought home a box of Fiber One Chocolate Chip Brownies the week before, and I LOVED them. They're only 2 Points each! Amazing!

They're great for breakfast! And they're great with 1 Point worth of whipped cream on top!

And I loved them SO MUCH that I ate two the first night she brought them home.

Then I ate two more the next day.

Then I finished the box. She bought two more boxes...

And then I ate four Fiber One bars in one day.

I mean, that's only eight Points...but that's a LOT of Fiber One bars! Too much of anything is bad, fiber included. Since my regular diet is already pretty high in fiber, I'm afraid I caused some kind of blockage.

See? Embarrassing.

Tuesday night I decided to try an Epsom salt laxative. I mixed two teaspoons of Epsom salt into a cup of water with lemon juice and gulped it down. It was totally gross. Then I waited...and waited...and nothing happened. Seriously. I've never taken a laxative in my life so I didn't know what to expect, but after a few hours I started looking online for people saying Epsom salt didn't work for them. Turns out, if it doesn't work, your colon is probably completely stopped up and you require surgery. I was then 100% convinced that I was suffering from severe fecal impaction and I was going to die. I did NOT want to die from SHIT!

But I didn't want to deal with going to the hospital and missing work (especially after being sick and missing work last week) so I just hoped the Epsom salt would work its magic overnight.

Nope.

By the time I weighed in at Weight Watchers on Wednesday, I felt like a blimp had been inflated inside my abdomen. It was awful. So I was not surprised at all that I had gained weight. (Well, I'd also been watching my weight like a hawk on my stupid scale ever day...stupid fucking scale.)

Wednesday night, my girlfriend brought me home some Milk of Magnesia. I downed four tablespoons and waited. I made dinner and, while it was cooking, I stretched out and poked and prodded at my stomach. I was able to feel my hips and ribs and possibly some organs, which was nice after shedding my 50 pound layer of fat. When dinner was ready, I got about three quarters of the way through eating when I finally jumped up and ran to the bathroom.

I weighed myself afterwards and I was down to 249 pounds again. Whew! Tonight, I'm at 248. I think I could still use a little, erm, "cleaning out"...but at least I don't feel like such a big bloated lump anymore.

I haven't walked for a few days, and my hopes of making it through the 100 Mile March have pretty much vanished. I do want to see how far I can get, though. The treadmill is calling my name. Well, more like whispering, but I'll take it.

And I'll try to hold back on the Fiber One bars.

One Foot In Front Of The Other

It really doesn't look like my 100 Mile March is going to get anywhere close to 100 miles.

I've walked every day so far since March 1...and I just barely made it to 1 mile. One single mile.

That's 1 mile TOTAL.

In four days.

Walking every day.

I SUCK!

Okay, I was really sick all last week and stayed home from work for two days and whatever I had moved into my lungs and now I'm coughing up wicked phlegm and can't breathe.

Plus, I haven't walked in forever. I haven't been on a treadmill since before my open heart surgery, losing an entire functioning valve, and decreasing my lung capacity by around 50%.

And, you know, I'm actually pretty proud that I've walked every day so far. Even though I've felt like shit. And even though the treadmill is set on 2 miles per hour and I can only walk for 2 minutes before stopping to hit my inhaler. And even though the most I've walked at a single time is .25 miles, and even though I have 98.93 miles left to go this month if I actually want to do the 100 Mile March. Because I'm actually trying--sure, it's only a few minutes at a time, but it's more than I was doing before.

(Oh, I've also gained four pounds since my last weigh-in two weeks ago, so I'm nervous about Wednesday. But I'm super bloated and menstruating and I'm basically a walking phlegm factory, so maybe enough bodily fluids will leave my body by Wednesday to at least keep me from gaining weight at my Weight Watcher's meeting. We shall see.)

This is going to be one loooooong March.

SICK

I am sick.

I HATE being sick.

I was so sick that I actually stayed home from work yesterday, and then I left after about 3 hours today. Ugh. More time sitting on the couch.

Being sick is sucky in general, but I really REALLY hate the food cravings I get when I'm sick. When my throat hurts, I want to stuff my face with milkshakes. When I have a fever, I want to load up on stuff like buttery crackers and bread. When I'm sick to my stomach, Sprite is the only thing that does the trick (and none of that Diet Sprite crap).

Being home alone with a full fridge and stocked pantry is very difficult. I've really tried to make sure we have plenty of healthy snack options, but when I'm home sick I can make anything unhealthy. I've been mixing whipped cream with hot cocoa mix, and stirring actual peanuts and Hershey's syrup into peanut butter. I can't stop myself.

I'm hoping this dose of NyQuil will knock me out so I can stop eating. I missed weigh-in yesterday and I would hate to go to Weight Watchers next week and find that I gained 15 pounds.

At least I think I've lost a pound or so of mucus...ewwww....

100 Miles

I'm a little bit nervous about what I may have gotten myself into.

I signed up the for 100 Mile March.

Ahh!

Now, it's not exactly 100 miles at once...because then I would just die. But you're expected to walk/run/jog 100 miles throughout the month of March. My company is participating and was asking for volunteers, so I got all optimistic and signed up.

Then I tried to ACTUALLY walk, and now I'm not sure I'm going to be able to do it at all.

There are 31 days in March, so if I walk right around three miles every day, I'll be able to do it.

Unfortunately, there's a huge disconnect between that math and what I can actually do.

I picked up my treadmill from my girlfriend's brother's house (because I obviously was never using it!), plugged it in, and hopped on. I started for the first minute or two thinking "Wow, this may actually be do-able!" By the third minute, I was panting and my lungs were burning, even though I was walking at roughly the same slow pace I'd do strolling through a museum. So slow, but so painful.

By the fifth minute, I was wheezing and if my girlfriend had been able to hear me, I would have called to her to bring me my inhaler.

And by the eighth minute, I couldn't breathe, my heart was pounding through my chest, and my teeth were hurting like I was about to have an asthma attack. I turned off the treadmill and collapsed in the closest chair.

I ONLY WALKED .2 MILES.

NOT EVEN A QUARTER OF A FUCKING MILE.

And I was DYING.

I mean, it's no secret that I am lazy and I hate to exercise. I haven't been able to trust my heart or lungs enough to really do much of anything. I really try to avoid moving at all if I can help it.

But I thought I could at least WALK!

Back before I got sick and had my heart surgery, I would get up in the mornings and go for a nice brisk walk. I was hitting around a 15 to 18 minute mile, depending on how many times I broke into a jog. So when I turned on the treadmill yesterday, I figured it would take me maybe 20 minutes to walk the first mile, and hopefully I could get through three miles in a little under an hour.

WRONG.

If it takes me eight minutes to get through .2 miles, each mile will be 40 minutes. That means I'll have to  spend 120 minutes, or two whole hours, walking every night to do this 100 Mile March.

I just don't know if I can do it.

I'm determined to try, but I'm going to try not hating myself if I can't do it. I'm going to try hard. I haven't been using my daily inhaler with any regularity for the past few months, so I'm going to start using it again. It's not like losing weight is going to regrow my damaged lung tissue. But an inhaler along isn't going to get me through 100 miles.

Tonight, I want to try to hit at least .5 miles. Maybe tomorrow I'll be able to do a full mile.

Maybe not, but at least I'll be trying.