I'm kind of a different person now.
Weight-loss wise, I'm still trucking along slowly but surely. Not much has changed there...I'm struggling with sweets, craving all kinds of shit, and compulsively tracking and weighing my food to keep within my daily Weight Watchers points. It's rough, yeah, but after more than a year on Weight Watchers, I feel like I'm sort of a pro.
Plus, I'm now at 219 pounds as of yesterday's weigh-in. That's 85 pounds down from 304! It's been a little more than a year (I started last August) and I'm still doing the 1-pound-up-2-pounds-down dance, but it's working.
The REAL change, though, is that I have a new heart valve. And this one WORKS! If you're not familiar with my health struggles, here's a recap: in 2007 I had a root canal that, unbeknownst to me, introduced some bacteria into my bloodstream. I became extremely sick and was hospitalized in December of 2007 with streptococcus, double pneumonia, bronchitis, pleurisy, severe dehydration, malnutrition, anemia...not a pretty picture. The antibiotics didn't work, I almost died, and the bacteria turned into endocarditis on my tricuspid valve. Little bits were flecking off into my lungs and causing major breathing and infection problems and nothing helped. I eventually had open heart surgery in late January 2008 at the age of 25. While recovering, I caught mono and within a few months, the artificial heart valve stopped working. It was frozen in a half-open position which allowed blood to pass but which caused serious problems for me. I couldn't do any of the activities I used to do. I'd get out of breath walking up a single flight of stairs, I couldn't run or play, and my asthma got worse and worse. I rapidly gained 50 pounds and stayed that way, fat and sick, for about 5 years. Last August, I joined Weight Watchers hoping to lose some weight and become active again. I lost weight, but wasn't active. Walking was still nearly impossible for me. I was thinner but still miserable and totally sedentary.
This summer, things got worse. My oxygen was dropping down to 80% just walking out to my car (I started keeping an oximeter with me to check my blood oxygen because I always felt like I was just about to drown and could never catch my breath). My resting pulse was around 130 beats per minute. Those are not the signs of a healthy person. It became so bad that I stopped going to meetings at work because I couldn't walk there (I'm a department manager, so this was not so great for my job). I stopped making plans because I couldn't go anywhere.
Then I went to Bonnaroo in June. I've been to Bonnaroo 5 times before this year and each year since my surgery was a little more difficult. After losing so much weight (around 70 pounds at the time), I though I could handle parking in the 'normal' campground instead of the handicapped area. WRONG. We missed shows because I couldn't get there, it took us 2 hours to walk to Centeroo, and I was thoroughly miserable the entire time. It was the saddest Bonnaroo ever...which is even sadder because PAUL FUCKING MCCARTNEY WAS THERE and I was too busy just trying to breathe and not die to even enjoy the show!!!!!!!!!!!!
Anyway, when I got back from Bonnaroo, I started going to my doctors and asking for tests. I needed to know if there was something else going on. My doctor and cardiologist and nurse practitioner checked my blood, my urine, did x-rays, EKGs, ultrasounds, etc. I'd been feeling like shit for 5 years, but it was like since I had lost 70 pounds, they were taking me seriously for the first time. The cardiologist said, "With how much weight you've lost, you should be feeling great." So instead of passing my symptoms (difficulty breathing, high pulse, severe fatigue, exercise intolerance, dizziness, etc) off on my weight, they started searching for real answers. I had them check for thyroid issues, vitamin deficiencies, lupus, internal bleeding, hepatitis, everything I could think of that would explain my problems and why I wasn't getting better.
They finally did a tranespophageal echocardiogram and determined that very little blood was actually flowing through my non-functioning mechanical valve. A cardiac surgeon met with me and wanted to try replacing it again. I was terrified. Seriously terrified. I mean, it was bad enough the first time. I wasn't sure if I could deal with the pain, the scars, the risks, missing work. However, I'd worked so hard to lose weight that I felt like I'd made a commitment to my health and I should try the surgery if they thought it might make my life a little better.
So I scheduled the surgery. I had to wait one month, and it was a fucking horrible month. I made all of my FMLA and short term disability arrangements, assigned my work duties to my employees and assistant manager, and made thorough user guides for all of my job responsibilities. To be honest, I was fully expecting to die during surgery. I spent that month making my final arrangements, writing out a will, gathering information for my cemetery plot, and saying goodbye.
The surgery day came and when they strapped me to the table in the operating room, tears were streaming hot down the sides of my face. I knew it would be the last time my eyes would be open.
But around 12 hours later, my eyes did open again. I made it. Well, just barely. That first night, my pulse kept dropping down to the low 40s and they had to put in a pacemaker to get me regulated. But when they turned off the pacemaker the next day, my pulse was steady. My blood pressure was good. I was alive.
They replaced the broken mechanical valve with a bioprosthesis from a cow. As a vegetarian for more than a decade, I was really upset about using a cow's heart. But I asked my friends and family and Facebook to have a Beef Free Day on the day of my surgery--I was overwhelmed to find out how many people committed to not eat beef that day. It made me feel better. We saved part of a cow, and part of a cow saved me :)
The surgeon was horrified by the condition of the mechanical valve. It's not like you can just peek in and see how your heart valve looks, so no one really knew how bad it had gotten. The surgeon was so blown away he took a picture of the valve to show my family...brace yourself for something seriously nasty. The mechanical valve they took out is below (shown from both sides).
Yeah...no wonder I felt like shit.
Within maybe 48 hours, I was able to get up and walk around. And I COULD walk around! Even with the bandages and open incisions, the IVs sewn into my skin and the telemetry wires coming out of every opening in my gown, I could walk. Once they got the catheter out, I started walking. That first day without the catheter, I walked halfway around the cardiac ICU floor of the hospital. I could not have walked that far before the surgery! The next day, I made it a full lap in the morning. Then I made another lap after lunch. That day, I ended up walking 6 laps around the hospital floor. I NEVER would have made it 6 laps around the hospital floor before the surgery! Seriously, I can't really express just how bad it was before, and how fucking amazing it was after. The fourth day, I walked 20 laps around the hospital floor! The patients in the other rooms all watched me and the nurses encouraged me as I shuffled around over and over, clutching the heart-shaped pillow to my chest incisions. They have markers every 25 feet along the wall, and one lap is 500 feet. 20 laps is 10,000 feet, which is nearly two miles! Sure, it took me all day...but I walked TWO MILES! If you've read my other posts, it took me four days to walk a single mile back in March. Two miles in one day is a total fucking miracle for me.
The fifth day, they sent me home!
I still had a long recovery ahead of me. They had to cut a bunch of muscles and nerves to get to my valve, so I can't lift more than 5 to 10 pounds. I have a total of 8 incisions (two of them very large) and 7 holes from the pacemaker, IVs, etc. I've been off work for just over a month now. But I AM RECOVERING.
My first week home, I had to have someone with me 24/7 in case anything went wrong. My amazing girlfriend, who had stayed in the hospital with me the whole time (just as she did in 2007 and 2008) took care of me when I got home. That first full day home, I asked her to take me for a short walk. We got dressed (in my sexy Velcro bra the hospital gave me, and with the heart pillow held tight against my chest) and we walked around outside for 10 or 15 minutes. Here's the crazy part: that was the first time we'd walked anywhere in the neighborhood in the 4 years that we've lived here.
After that, I started walking a little more each day. Some days the pain was bad and I could only do 10 minutes, but I still made myself walk 10 minutes where before, I would have just stayed on the couch. Then the neighborhood suddenly seemed small. We started going to parks near us. After the first couple of weeks, we even tried hiking. I went from not being able to walk from my car into my desk at work, to hiking for an hour without stopping.
Last weekend, we hiked for 4 hours and it felt completely amazing!
I've been eating a lot while I've been at home on short term disability so I'm not losing weight any faster, but I'm getting stronger. I feel healthy. I feel GOOD. I feel like the world has opened up to me. We went to St. Louis for a funeral and I actually felt guilty about not walking during the day we spent in the car. After the funeral, we went to the St. Louis Zoo and walked around for 2 hours. Before, we would have shuffled from one bench to the next and missed half of the zoo. This time, we went on every single path...AND we parked in the free parking down the street instead of wasting $15 for a close spot.
It really is a whole new world for me. There's so much I want to do now. I'm still in pain and I'm still healing, but I should be returning to work next week. Now I'm already planning to take advantage of our on-site gym and personal trainer for the first time since I started working there. I've completely stopped taking my inhalers because, as it turns out, I don't even have asthma...all of my breathing problems were cardiac-related.
Also, my cardiac rehab starts tomorrow. I'll slowly learn how to move my body again. I'll get faster, and stronger, and healthier.
I couldn't be more excited.
Bonus: here's a picture of me before Weight Watchers, and a picture of me last week. I still have a long way to go, but look at the difference! I might need a new cardigan soon!
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