91 Pounds Down!

This is a 91 pound fish. That is a BIG FISH, yo.

I am down 91 pounds as of this week.

Let's just let that sink in.

91 pounds. I really can't believe it. I feel like I've had so many setbacks, like so many weeks I gained instead of lost, but here I am...91 pounds lost. Well, not lost. I didn't 'lose' them, I worked my ass off, tracking every bite and now pushing myself harder and harder at cardiac rehab. So 91 pounds fucking eliminated! Yeah!

At weigh-in on Wednesday, some of my coworkers were complaining about how they felt like they kept gaining just as much as they lost. One girl was saying, "I go down .6 one week, but then up .2 the next week. Then down .4 and then back up .1." I wanted to shake her and say, like, "Do the math, dummy! You may be up and down, but down .6, up .2, down .4, and up .1 is still a total of .7 down! That's progress!" But I didn't say anything. I still feel really awkward acknowledging my weight loss. I probably should have spoken up, though, because I have TOTALLY been there. The weight chart on my Weight Watchers app looks like a saw. It's a jagged line, up and down in tiny increments, but the overall slope is downward.

I've mentioned on here the weeks where I've gained 10 FREAKIN POUNDS in one week. And back at the beginning of this year when I hit that stupid fucking plateau and didn't lose a single pound for two months.

I mean, yeah, I've lost 91 pounds. But that's been since last August. That's definitely less than the 2 pounds per week that people expect. I sometimes do feel like I've gained as much as I've lost. Mathematically that's obviously not the case, but I've had enough tiny gains that I know now not to freak out. Little by little, up and down, I've been making progress. And I didn't let those 10 pound gains stop me (seriously, 10 pounds...that's nuts). And here I am. 91 pounds down. Slowly but surely.

Mirror Mirror

I have a strange relationship with the reflection in the mirror. Sometimes it's full-on loathing, sometimes it's a love/hate type of thing, and sometimes I don't recognize the girl at all. Today I think I recognize her but I'm not sure I like what I see.

Even though I've lost 91 pounds now and at the lightest of my entire adult life, I do NOT feel sexy. I've been chasing that feeling I had in college, even though I don't want that life anymore. I felt awesome about myself. Looking back, it's clear that I was suffering from serious self esteem issues and a gripping alcohol and drug problem...but at least when I looked in the mirror, I felt totally fucking hot. Right now, I do NOT feel hot. It's like even though I'm much smaller than I was a year ago, my body still looks the exact same. Still lumpy and saggy, my stomach still hanging down and my thighs still rippling. Smaller, but the same.

When I was very young, I used to stare at myself in the mirror for hours and hours, in love with my reflection. I had a dainty brass and glass dressing table with a little padded chair, and I'd sit there and stare at myself, admiring my eyelashes and my perfect lips and my icy gray-blue eyes. I would kiss my reflection with my eyes open, leaving Bonnie Bell lipstick prints on the glass.

As I grew older, I started shying away from the mirror. I saw my pudgy stomach, my braces, my glasses, my ill-advised fe-mullet. And I stopped feeling cute and more like a monster. Things only got worse the bigger I got, until in high school I could hardly go clothes shopping because I hated seeing myself in the dressing room mirror.

Then in college, something changed. I gained some confidence, I came out as a lesbian (and then decided I liked guys a little too), I rocked my nose ring and dyed my hair crazy colors. I felt good about myself. I had friends, I had fun, I didn't notice my size so much when I was fall-down drunk. I could go to frat parties charged up with drugs and vodka and not feel like people were judging me by my fat rolls.

But now I'm sober, and I see everything. I see the fat ripples above my knees, and I see the saggy skin around my ass (who knew that could even happen?!). I see my heart surgery scars and my double chin. Nothing about my reflection is pretty.

I can still find some moments of prettiness. If my hair is just right, and my mascara is on perfectly, I can see myself as I did when I was a child. Pretty lips, pretty eyes, smooth skin. But then my vision zooms out and my body comes into focus and I turn away.

I wonder if I'll still feel the same once I've lost all the weight I feel like losing. Somehow I doubt it. Decades of being disgusted by your own body won't be whisked away by losing weight. Like I said, I may be smaller but I'm still me. More's the pity.

Work, Bitch

Apparently my cardiac rehab is working--I not only feel stronger and healthier, I also lost 3.4 pounds at weigh-in this week. Nice!

I'm now down to 215 pounds even, down 89 pounds from my starting weight of 304 last August. 89 pounds...that's pretty crazy. That's more than my 9 year old nephew. That's more than my old Rottweiler. According to the list, I'm one pound away from having lost a NEWBORN CALF. Whoa.

As much as I hate going to rehab three times a week, I have to admit it's kind of nice. It's strange to have basically a regular gym schedule. And they don't just turn on the machines and let me go--I have to be hooked up to the heart monitors, they come and take my oxygen and heart rate and blood pressure while I'm working out, and every session they try to increase my time, my incline, my resistance, etc. After my heart surgery I was scheduled for 18 sessions, so I think I still have around 4 weeks to go.

Yesterday, though, was TOUGH. I kept bitching about the stationary bike (I'm not used to working the fronts of my legs, so it makes me tired really fast). Well, after they were nice and tried to switch things up for me, I wanted to go back to the stationary bike so badly! They had me on something called an Arc Trainer. I guess they're all the rage but I've never even seen one (obviously I don't exactly frequent a gym). It's basically like a nightmare mashup of a stair climber and an elliptical machine. It's fucking horrible.

The nurse had me start the Arc Trainer and I seemed to get the hang of it. Thinking I would be fine, she set it for 20 minutes and said that I didn't have to do the full 20 but just see what I could get through. Then she went to go make her rounds to the other rehabbers. After about 60 seconds, I was sweating and panting and my butt and hips were screaming in pain. After maybe three minutes, I thought I was going to pass out. I slowed down long enough to turn my playlist to "Work Bitch" (I love Britney, especially when working out now, and ESPECIALLY this song) and I powered through. I got to five minutes and started looking around for the nurse, trying to make eye contact. After about seven minutes, my chest was burning like it hasn't burned since before my surgery. I didn't want to stop and admit defeat so I kept going, but the machine started beeping some kind of heart rate alarm. I kept going, gasping for air, glaring straight ahead, determined and frustrated and possibly dying. Finally the nurse rushed over and told me my heart rate was way too high (duh) and had me stop. That was 11 minutes of pure hell. Seriously, it's like a torture device with fancy foot pads. So they put me on a range limiter for another 10 minutes as a cool-down and then I got to go home. In the car, my lungs and chest were still on fire and I was coughing up phlegm just like before my surgery when I was in a constant state of cardiac asthma.

Anyway, I survived and I told them I am determined to try it again on Monday. Just maybe for five minutes instead. My legs and ass are sore, and I have hip muscles that I've never felt before. Ouch. What am I going to do after my rehab is over? I don't have anyone to push me like that, and I don't know if I can push myself like that. Working out sucks but...well, if I keep seeing results at weigh-in, maybe it will be worth it after all.

Milk of Magnesia

So the past couple of weeks, I've gotten into what seems like a bad habit. On Tuesday nights before my Weight Watchers weigh-in, I've taken a dose of Milk of Magnesia. I don't know...it sort of feels like cheating.

I had never tried Milk of Magnesia before this year, but I had a, erhm, stomach problem earlier this year and it actually ended up helping. Then I stocked up on it in case I had the same problem again, and when I felt bloated a couple weeks ago before weigh-in I decided to take some. I hate feeling bloated before weigh-in. And the thought of having a falsely high weigh-in is devastating to me. I'm one of those people stripping down in the Weight Watchers line, even taking off my tiny bracelet and dainty necklace, my work lanyard, extra rubber bands, everything. We joke about the "pre-weigh-in-bathroom-rush" where for the hour preceding the weekly weigh-in, there's a constant cycle of people from my department at work trying to eliminate those last few ounces. We all go to the bathroom at least once, and no one drinks water or eats any snacks all morning. But this Milk of Magnesia is taking it to a whole other level. Now I feel like if I don't get 'cleaned out' before weigh-in I'm going to weigh like 3 pounds more and then I'll be really sad.

I don't know. It's gross. It's weird. It's not even really helping much. But it's making me feel better. That's gotta count for something, right?

The Lovely Bones

Let me tell you, it is SO WEIRD to see my collarbone. I walked past the mirror this morning and stopped in my tracks for a double-take. The rising sun slanting through the blinds in the living room cast shadows in the hollows, and I was stunned to realize they actually were hollows.

I have a real collarbone. One that I can show off. Not just the idea of a clavicle...an actual bone that I can run my fingers along and choose necklaces to lay against.

See, I've been fat forever. My entire life. I remember being chubby in kindergarten and I just kept growing up and out. Then I stopped growing up and kept growing out. Layer after layer of fat softened my body and buried my bones.

When you weigh more than 300 pounds, it's easy to forget you have bones at all. I started to feel like a candle stub that was dipped again and again in melted wax, each dip leaving another layer of soft wax, rounding me out and filling me up. When I was desperate, which was pretty much all of the time before I finally took control and began losing weight, I would imagine myself taking a knife and carving all the fat off my body. In all the times I envisioned this, I never once saw my blade hitting bone. An organ sometimes, yes, but I figured that would be a small price to pay to get rid of the fat. Never bone, though. I felt like my fat was packed into my lumpy suit of skin without bones or anything else besides fat and maybe blood.

I'm fascinated by x-rays of myself--it's so strange to see my skeleton. It seems like a different person almost. It's hard to believe that it's there, packed beneath all of that fat. It feels impossible that I'm made up of such small, fragile things. My bones seemed as mysterious to me as the bottom of the ocean.

But now I can SEE my bones. I can see the bone jutting out at my wrist, and my knuckles moving as I type. I can see the light on my cheekbones and the slight depression beneath them. My jaw is an actual jaw and not just the slope from my face to my chest.

Like I said, it's weird. But good. Definitely good. I'm still 217 pounds so there are still lots of layers to fat to melt away, but I can see that happening. I'm going strong. And this way is definitely preferable to carving my body out of fat--it may take longer, but there will be significantly less blood lost in the process.

Tastes Like Shame

My dad has never been proud of me.

That's just a fact. I was always one of those overachieving, desperate-for-approval kids, and that spilled over into my adult life. I like to think that I hit pretty much all of the standard checkpoints that proud parents want to see their kid achieve. I did everything right.

Here's a recap of my charmed existence:
I never once got detention.
I never failed a class.
I was in the "gifted and talented" class all through school.
I was always in the 99 percentile for those annual standardized tests.
I got great scores on my SATs and ACTs.
I was a Girl Scout for 13 years.
I was active in sports throughout school, and I did a decent job.
I graduated high school with Honors, Distinction, and my name was in the commencement package more than anyone else in my class: as a member of the German Honor Society, National Honor Society, National Forensics League, the Journalistic Honor Society, the Honors class, and as the designer of the damn thing.
I got a full-ride scholarship to two good colleges.
I got into an elite private university, where I double majored.
I've never wrecked my car (knock on wood).
I've never been arrested (knock again).
I didn't end up pregnant, in rehab, behind bars, etc.
I've held down decent jobs since I was 16.
I worked my way up from the bottom of my company, and I'm now a department manager overseeing two teams of professionals.
I'm well-paid and consistently recognized at work for my achievements.
I'm in a healthy, committed relationship of nearly eight years.
I own a nice house and a nice vehicle and I go on nice vacations on a regular basis.

Basically, I've lived my life to be a good kid. I'm not bragging. On the contrary, I wish I would have had more fun when I was younger and would have focused less on being perfect. But I never got into trouble. I worked hard. I make good money. As far as my parents know, I'm a healthy and wholesome person (they don't need to know about my college exploits, and as bad as I was in college, it never affected my school work, my grades, or besmirched my pristine reputation with something like a criminal record).

Most parents would be proud.

Not my dad.

As someone so desperate for approval, it was always so soul-crushing to know that my dad was never, ever proud of me. Sure, he was happy that I graduated. Happy that I'm working. I guess it could be worse. But I've never felt him look at me with anything akin to pride.

Until Friday.


We were at a memorial for my aunt's boyfriend who died suddenly of a stroke last week. On Friday, the entire family gathered at my aunt's house for a ceremony (including the release of dozens of tie-dye balloons, some bright Chinese lanterns, and a rousing version of "Rambling Man"...a totally fitting tribute for the dude who died). I was in the kitchen, hovering over my healthy bean dip and trying to ignore the cupcakes, cookies, pumpkin roll, and pie sitting next to me. I heard my dad calling me into the front room so I wiped my face and shuffled in there.

He motioned for my grandfather and great-uncle to look at me. I stood there and my dad stood next to me, and he waved his arms at me and said, "Doesn't she look great?!"

I felt faint. At first, I thought maybe it was a cruel joke. It certainly wouldn't be the first time. But no. He truly wanted to show me off to his own father. I smiled and self-deprecated ("Oh, yeah, haha, I still have a ways to go...").

Well...it was pretty surreal, but he looked proud. For the first time ever, I felt like he was happy I was his daughter.

I quickly made my way outside to collect myself and I felt a little sick. I mean, yes, my dad is a total asshole (or see here or here...). I shouldn't have been surprised. But it made me really sad that it took losing weight to finally win his approval. I feel like if I ever gain this weight back, his pride will again turn to disgust. Maybe that's for the best--I don't need someone around who discounts everything else I've done with my life and who only cares about what I look like. This pride feels an awful lot like shame.

But still...it's nice to feel like I've made my father proud. Finally.

Lighter But Not Smaller?

I've been trying to research this on the great wide web, but I'm falling short. There just isn't info out there that relates to what I'm going through.

See, I'm technically lighter right now than I've been my entire adult life. I weigh less than I did in high school and in college, and I'm losing weight week by week with Weight Watchers.

But I'm not SMALLER than I was in high school or college. At least, I don't think I am. I remember wearing a size 16 during the summer between high school and college comfortably, and now I can squeeze into size 16 jeans but they're definitely not as comfy as my size 18s. Like, I'm not complaining. The last jeans I bought were size 26 and I immediately tore out the tag, cut it into tiny pieces, wrapped it in toilet paper, and flushed it. I didn't want anyone else to see my size, and I got sick seeing it myself.

Right now, though, I don't feel my smallest. I've read that a lot of it is psychological and that it will take some time before my mental image catches up to my actual reflection in the mirror, but that's bullshit. I mean, yeah, I have a pretty warped idea of what I look like. We've established that months ago. But I am seriously bigger than I used to be, even though I weigh less. It's not in my head.

I have this really cool belt that I only kept around in case I could use it for a craft project--I bought it when I was 18, wore it for a year or so, and then grew out of it. It's been in my craft supplies for the past decade or so. I found it a few days ago and tried it on--it barely fit around the smallest part of my waist, which is way higher than I would have ever worn a pair of pants when I was 18. It was several inches from closing around my hips, where I would have actually worn it. So what gives? How did the belt fit when I weighed more than I do now, and it's not even close to fitting now that I'm lighter?

Is it just age? I'm so much fucking older now...are my organs sagging?! At age 31, are my intestines getting fat while I'm losing weight everywhere else? Did I just lose all of my boob weight, and now the weight has redistributed to my stomach? Yeah, that's a lovely image. Just what I want. Work my ass off to lose weight, only to find myself with no tits and no ass and a big, dumpy stomach hanging out in front. Or do old people just look bigger at the same weight? Is it possible that I've lost so much bone density that I will have to lose a lot more weight to be the same size? Like, I'm thirty-freakin-one. I shouldn't have osteoporosis, right? And I was a cheesetarian for a decade...I think I devoured more calcium than anyone else in the world. If anything, I should have calcium formations on my bones.

Ahh. This is just another of those obnoxious weight loss things that I don't fucking understand. I'm still not quitting. I'm still losing weight. I'll keep going until I'm happy with my weight and my size. But really...what the hell? It doesn't make sense, and I hate when stuff doesn't make sense. Maybe I should have gotten a biology major instead of a worthless Women's Studies degree...

Another Hungry Day

At this point, I've lost a little more than 85 pounds on Weight Watchers. I'm actually smaller right now than I was all through college. In fact, I can only remember weighing this amount or less two times since middle school: once was the summer between high school and college when I went on Atkins pretty religiously for a couple months and got down to 211 pounds for a day (before shooting back up to 215...but still. And then I started eating like a human again and gained it all back.). The second time was the summer after college when I was super poor and had to choose between food and vodka and I chose vodka for a month or so...I starved myself down to 216 pounds. Again, that was only for about a week before my grandparents took pity on me and started buying me food.

The rest of the time since middle school, my weight has swung wildly from 225 pounds up to my highest (recorded) weight of 304 pounds. Now my scale has been fluctuating 213 pounds and 219 pounds. Not bad.

Buuuut...I am STILL OBSESSED WITH FOOD.

I wish things had changed. I wish I could live like a normal person and eat when I'm hungry, socialize without thinking about food the entire time, plan my day without thinking first about what I'll eat that day. But that's not me. That's not my life. Instead, I think about food when I wake up in the morning. Hell, sometimes I dream about food. Yeah. Some weekends when I have nothing going on and can sleep in as late as I want to, I get up ONLY because I want to eat.

There are all those little tricks people tell you about, like doing something else for 15 minutes and then eating only if you still really want the food after 15 minutes. Or having a little nibble of whatever you're craving and then stopping because your body doesn't care how much it gets, only that it gets something. Well...that's bullshit. When I try to do something else and reevaluate if I want the food in 15 minutes, I just spend a full 15 minutes thinking entirely about food. And if I just have a nibble, then it's even worse and I can't think about anything else in the world until all of the food is gone. Nibbles do not work for me. I am too obsessed with eating and with being full.

Weight Watchers has been amazing in helping me lose weight, and it kind of works with my food obsession. I can track and pre-track and plan my meals well in advance and, you know, it takes a certain kind of person to weigh and measure every morsel of food that you consume. But it also means that I can never just 'let go' and eat without thinking about it. That's a good thing, but it's also incredibly frustrating.

Like today, for instance. I am HUNGRY. Or that's the message my brain is getting. I know I'm not actually, literally hungry. I have food in my stomach. I am eating roasted new potatoes and onions and zucchini with vegetable broth and barbecue and shaved parmesan and it's spicy and warm and delicious, but I still want more. More of anything. I want to cram food into my mouth until I feel sick.

You know that scene in Matilda? Where the Trunchbull makes that kid Bruce eat the whole chocolate cake and he's all sweating and everything thinks he's going to pass out and die? Yeah, I could totally eat that cake. Not a question. There is no doubt in my mind that I could take a fork, settle myself in front of it, and just devour the entire freaking thing. Totally. And I'd love it. And I would ask for milk to wash it down.

Of course, a single slice of cake is something like 14 Points Plus on Weight Watchers. I get 34 Points per day and I am stingy as hell with them, so there's no way Cook's chocolate cake is coming anywhere near my lips. But I could do it. And it would be fucking awesome.

So when does this food obsession go away? Does it ever? Will I ever be able to see an office email about cupcakes without spending the rest of the day eyeing the cupcakes, weighing the pros and cons of eating a cupcake, wondering how good the cupcake is, getting panicky that too many people are eating cupcakes before I decide whether or not I want one? Or is this my life now? Where every food commercial makes me start to drool, and just driving past KFC gives me thoroughly un-vegetarian-like cravings?

When my best friend died two years ago, I thought the pain would never go away. I thought that every day would be a gray haze and I would never be okay again. Slowly, somehow, the pain receded. Instead of thinking about him every minute, I thought about him maybe every 15 minutes. And then maybe every hour. And then a couple times a day. Now, I love him and miss him and think about him at random wonderful and heartbreaking times, but it's not constant. I think of him when his favorite song comes on, or when I read a CNN article that would have gotten his attention. The point is, it got better. It took awhile, but it did definitely get better.

My food cravings though? Not better. It's been more than a year since I started Weight Watchers, and I'm thinking about food just as much as every. WHEN WILL IT END?!

For now...fuck it all, I'm getting that cupcake they emailed about. There are only three left and it's driving me fucking crazy. At least it's a mini cupcake.

Anal Volcano

We have eruption!

My pilonidal cyst finally burst. Thank goodness. I was just on the verge of going to the emergency room--the pain was moving beyond what I could handle. My thoughts were cloudy, my breathing was shallow, I couldn't stop trembling, and the pain was just overwhelming.

When I mentioned that I have only sought medical treatment twice for my cysts, that was true...but I've come really, really close just about every time. It seems like just when the pressure and pain reaches its absolute worst and I feel like I can't possibly live another moment longer, just when I begin to doubt myself and think that maybe I do need to go to the hospital after all, just when I'm making a list in my head of what items I need to grab before asking someone to take me to the hospital, that's when the cyst finally bursts. Like once when I had waited a week in complete agony until I broke down and called my mother--she came over waited while I took a quick shower since I hadn't really moved all week...while I was in the shower, I heard a splat and felt relief and saw that the cyst had ruptured with such force that it covered the shower wall behind me. My mom heard me gasp and came to the door, but then started gagging at the smell. I sent her home. No hospital needed.

So I was at my breaking point again this time, leaning forward on the couch and looking around the room to decide what I needed to shove into my purse before I asked my girlfriend to drive me to the ER, when I suddenly felt relief, my head cleared, and I felt warm, sticky, wet grossness spreading across the back of my pants.

I gasped, jumped up from the couch, and fled the room. My girlfriend instantly knew what was happening and I could hear her cheering as I slammed the bathroom door behind me. I turned on the water and jumped in the shower fully dressed, knowing that the cyst fluids were already seeping through every layer of my outfit. The smell was overpowering, even before I undressed. It smelled like blood, pus, infection...super super gross. And once I started peeling off layers and more pus gushed out, the smell grew. As bad as it smelled, though, I knew that it was the putrid smell of relief.

As usual, I pushed and squeezed (gently) until I couldn't get any more out. After washing everything, I was left with an inflamed but essentially empty pus pocket and the raw, broken skin from which the fluid had burst. And as usual, I sprayed it with Bactine, taped on a bandage, and returned to my girlfriend where I promptly fell asleep to make up for the past several sleepless nights.

As I said, this is the same cycle that happens every time. It gets more and more painful until I don't think I can live through one more second, and then it explodes and grosses me out and it's fine. It will continue to seep a yellow liquid and some blood for a few days, and if I'm not careful it may swell up again, but now that the skin is broken it will burst more easily for the next month or so. Thank goodness. I was so close to going to the hospital, and that's the main thing I wanted to avoid. Oh, that and not getting the septic bacteria into my blood stream. That's important.

This is just one of those other awful 'fat girl things' that I suspect more people experience than admitted. This is also something I really hope just 'goes away' as I lose more weight. I've only known one small person with a pilonidal cyst. Maybe I'll just magically stop having them? I don't know. All I know is that I'm so thankful I'm not in pain right now, and I'm so grossed out by this oozing sore on my butt crack. At least I survived this one again, and it again gave me perspective: my heart surgery incision pain is basically nonexistent now, especially in comparison!

My Pilonidal Cyst Story

Gather round, children, and prepare to be amazed and revolted by this captivating tale of...a cyst. A really big cyst. A really big, gross, humiliating, excruciating, recurring cyst.

When I had heart surgery in August, I expected to be in a lot more pain than I was. However, after approximately a decade of dealing with one of the most painful and embarrassing medical problems imaginable, the surgery pain seemed to pale in comparison. No matter how much my incision hurt, or how much my cut muscles ached, I could remind myself that the pain of my cyst during a flare-up was so significantly worse that my surgery didn't seem so bad after all.

My pilonidal cyst is something I try to keep a secret from as many people as possible. It's just so awful. I already bared all, though, while oversharing about my topical yeast infections, so I might as well throw this out there. I'm having a flare-up right now, so it's all I can think about.

There is not much information available about  my kind of pilonidal cyst because everyone's cyst experience is different. I suspect that people with issues similar to mine just don't talk about it. So I'm going to talk about it. Prepare to be grossed out. I was going to post a picture of mine but it's still too embarrassing--just try a Google image search instead, and look for the most disturbing and painful unpopped pilonidal abscess possible.

At the beginning of my college summer vacation when I was 21, I started feeling like I had bruised my tailbone. I was drinking all the time while also taking Paxil for my Post Traumatic Stress Disorder (following a massive fire I was in and in which I lost all my belongings). I was blacking out multiple times every week, so I assumed it was entirely possible that I had fallen down drunk. My tailbone kept getting worse and worse, though, and after a week or so I could barely sit down. That's when I felt the lump rising. It was at the top of my butt crack, slightly to the right, and I could feel a squishy bump about the size of a walnut half under the skin. It was incredibly tender and hot to the touch. I tried looking it up online but didn't know how to describe it, so I didn't get any useful results.

After a week or so of increasing pain, it came to a head one night while I stayed up shaking and sweating. I think I was probably going into a state of shock or something. No amount of alcohol could dull the pain, and there was no position in which I was even remotely comfortable. I couldn't sit, I couldn't lie down, I couldn't even stand. I remember crawling to the bathroom that night because I couldn't get up, and I passed out from the pain. I woke up on the floor in a pool of sweat with the cyst bigger and redder and hotter than ever. The school clinic was closed for the summer and I didn't want to pay to go to the hospital, so I didn't know what to do. I was so scared. As it grew, I wondered if it was cancer. Or some kind of boil? Or like a chip from my tailbone broke off, lodged itself in my muscles, and caused an infection?

After I woke up on the bathroom floor, I tried exploring it more. It hurt too much to poke at it, but it really felt like it was a small balloon filling up with something, and that if I could just break through the skin it would come out. I gathered the equipment I could think of: a razor blade and a thumb tack (I couldn't find a needle). First I tried the razor blade. It was hard to see but I just numbed it with ice and tried slashing across the top with the razor. I hoped the infection was close enough to the surface that it would burst and I would be fine. Unfortunately, the infection was deeper than I thought and the razor only succeeded in hurting me. I tried the thumb tack next, but the pain was too bad for me to apply much pressure. I could get the point in, but it didn't go far enough in to help.

I stayed up all night, trembling and fighting to stay conscious. The next morning after fainting in the bathroom happened to be my first day as a summer intern at the library. I made it to the library with my roommate/best friend (the one I've mentioned who died so tragically and ripped my world apart) but I was literally standing up while driving there--I couldn't put my butt on the seat of my truck, so I held myself up with the steering wheel and drove as carefully as I could. Seriously, though, driving while standing is not a good thing. We made it there but just barely.

When we got to the library I hobbled in, still unable to walk or sit and wearing a skirt because pants would touch the cyst. We began the first day tour, during which I was still shaking and sweating and thinking of nothing but the mind-numbingly intense, throbbing, unrelenting pain. About fifteen minutes into the orientation, the pain just suddenly stopped. I could take a deep breath finally. I stopped shaking. My head cleared. I felt blissful relief.

Then I started smelling this terrible smell. It was like a container of week-old turkey salad (the kind with dark turkey chunks and mayonnaise) that was just pulled open. Just a strong, meaty, gross smell. I couldn't figure out what the stink was, but I was so relieved by the  overwhelming absence of pain that I didn't really care.

My best friend then grabbed my arm and he whispered for me to go to the bathroom. Thinking maybe I had food in my teeth or had started my period, I excused myself and went to the restroom. As soon as I got in the stall, I pulled down my jean skirt and felt hot liquid on my legs. I touched my butt with my fingertips and was horrified to feel them slipping in thick slime. I lunged out of the stall with my skirt down and locked the deadbolt on the main door (the bathroom was empty besides me). The smell was even worse with my skirt down, and I began frantically wiping myself with paper towels. There was pus and blood everywhere. It looked like someone had been murdered. Or like I sat on a blender full of animals and turned on the blades. Just totally disgusting. And it wouldn't stop coming. As I gingerly pushed around the lump, more and more pus and blood oozed out. It was this foul brown gurgling stuff, and no amount of paper towels was going to work.

I cleaned myself up as much as I could and fled the library, praying that no one would see me. I made it back to the apartment where I could see everything better in a mirror, and just kept pushing to get more and more nasty brown goo out of me. The sticky red blood mingled with the hot white pus to make a thick marbled brown substance, and the week of festering had made it smell like rot and death.

I was not in any significant pain from the moment it had burst in the library, so I could easily press my fingers around the edge to make the liquid pulse out. It took hours it seemed before I had coaxed all of the infection out, and the skin felt loose over the now-empty cavity. I did end up going back to work the next day and told everyone I had just thrown up, but I suspect they knew something was more awful had happened. I told my best friend that it was an injury from my tailbone and he was kind enough to pretend to believe me.

I dove into researching it more and finally found the most likely culprit: a pilonidal cyst. That means 'nest of hair' (I KNOW! So gross!) and I have read many comments claiming that the pain of a pilonidal cyst flare-up is worse than the pain of natural, undrugged childbirth. I believe it. The pain is intolerable, and the shame is unbearable. There's lots of great information out there about what it is (one of my favorites is the Pilonidal Support Alliance), but no one is really truly certain what causes it or how to fix it.

There are certain factors that are common amongst sufferers: they are mostly male, mostly overweight, and mostly very hairy. Poor hygiene, sitting too long, and not shaving can also affect your chances of having a flare-up. So, yeah, not exactly something I want to share: hey, everyone, I have a totally gross cyst that comes from being fat, lazy, dirty, hairy, and not a lady. So yes, this is another one of those gross fat girl things. Not all fat girls get them, but I don't think I would have it if I wasn't fat. I think my ass fat makes my butt crack deeper, which causes more hair and stuff to get caught in there, and apparently led to my current situation.

Now, some people have pilonidal sinuses, which cause them to weep out pus and blood, but they don't get the abscesses or cysts because the infection isn't trapped. Some of those people have to wear diapers because so much nasty stuff leaks out of their butt crack. I am here to tell you that I would MUCH rather have that than have my cyst. Instead of having a sinus, or a tiny hole that allows it to drain, I instead just collect the infected fluids in a cavity between my ass cheeks. This cavity gets bigger every time I have a cyst because the infection tunnels into my tissue, and because I don't have a sinus to drain it, I have to wait until the skin is stretched so incredibly tight because of the sheer quantity of pus and blood that the skin bursts open and sprays infection all over the place.

After that first eruption (my best friend and I called it my 'anal volcano'), I ended up getting a flare-up around once a year. It was usually a week of total torture--unable to move, unable to even wear jeans because of the pain, unable to go to work or drive or sleep. I kept it a secret from everyone I could. Sometimes it ruptures in the most awful places, like a gas station bathroom or on vacation. It's terribly inconvenient and ridiculously painful, but the surgery to correct it is also really painful, really awful (they sometimes sew a 'marsupial pouch' which sounds so so so gag-me-gross), and totally not guaranteed to work. Some people have had the surgery over and over and the cysts just keep coming back.

I have had probably 10-12 cysts since then, and I have taken care of most of them myself. I've spent a decade honing my care. I learned that antibiotics won't help, and nothing really kills the pain except getting it to pop. Sometimes if I take enough hot baths with Epsom salt the cyst will weaken and burst. Sometimes if I alternate a really hot heating pad with an ice pack, the abrupt change in temperature will cause it to rupture. Sometimes I make a compress of crushed garlic that is said to thin the skin and help the infection. The bad part is that, even with these remedies, it still won't burst until it's ready. I have to honestly feel like I'm dying for around 48 hours (that's after a week of intense but not near-fatal pain) before anything can make it explode. And sometimes they just never do burst--luckily, I have only been forced to seek medical attention for two of them.

Once the emergency care clinic doctors sliced me open with a scalpel but didn't go deep enough--some blood oozed out, but the cyst did not burst. I was in more pain from the scalpel cut, but after another day or so of the infection brewing, the cyst was stretched so tight that the weakened skin from the incision split open and it burst. Whew. The most recent time was also the most horrible. This cyst had been going on for almost two weeks, and it was huge and purple. I had gotten desperate and had tried cutting it with razors, scissors, needles, tacks, and even a syringe. Nothing helped. It was around the size of an egg, and I couldn't do ANYTHING. No walking, so sitting, no lying down. I had to miss work for a couple days and I was out of options. So I went to the emergency care and the doctor there was clearly horrified and disgusted. He could barely speak, but told me that it was beyond what he could care for, and told me to go straight to the hospital ER. He even called ahead to help me get in. When I got there (I rode in the back seat, laying down on my stomach and crying...there was no way I could sit) they gave me a pain killer but it definitely did not help. The ER nurse made me lie down and she just cut it right open. I felt the liquid gush between my legs and all over my back, but she didn't stop. Instead of allowing me that moment of relief, she told me that she had to scrape out the pockets of infection or it would just come right back. She stuck something in the gaping hole and I couldn't stop screaming. She scraped and the way the small pockets burst, it made me imagine them as the pulp inside an orange--those fat little envelopes full and ready to pop. But she just kept going. And going. I like to think I have a pretty high tolerance for pain after dealing with this for so many years, but she pushed me to new limits. I didn't think it would ever stop.

Finally, she finished scraping and started cleaning me out. That was horrible but not quite as soul-shatteringly painful. Then she packed the hole full of gauze and told me to have it removed in two weeks. When I got home, I couldn't even look at it. The single time I glanced at it in the mirror, I saw the bruised and angry purple flesh bulging around a curly gauze tail that was pink with blood. I felt more like a pig than ever. When I went to the doctor to take it out, I had to hold onto the exam table while he pulled it out--it must have been three feet of bloody gauze, and the feeling of it being pulled out of my body made my skin crawl.

Since that last ER experience, I have tried desperately to avoid letting my cyst get that bad. If I get any skin that feels like a scab I can potentially peel off, I do, because I feel like it makes the rest of the skin thinner and therefore easier to burst. I clean there regularly, I avoid sitting for long periods on my tailbone, I never wear thongs, and any time I start to feel tender around my tailbone I immediately start spraying Bactine and applying hot and cold presses.

Around a year ago, I had called into work and while explaining to my boss why I couldn't come in, I lost control and started sobbing hysterically into the phone. The pain and embarrassment were just too much together. I'm glad it happened, though, because she was able to introduce me to something that one of her former colleagues had used for the same issue: ichthammol ointment. It smells like tar and stains everything and makes an enormous mess, but it helps thin the skin and, instead of bursting, the cyst just kind of starts leaking out after a couple days. I've only used this treatment twice, but each time it worked like a charm. Since it didn't burst, I don't think all of the infection got out either time, but it got rid of my pain so I can't complain. I can't believe more people don't know about this. I wish I had found out about it years ago--it would have saved me some serious pain. I mean, pain so bad that I can't help but think about killing myself. Hopefully someone searching for a way to help their pilonidal cyst will stumble across this page and try the ichthammol ointment. It's been a true miracle for me, and I haven't even had a cyst flare-up for almost a year. The ichthammol is super cheap and I just smear it on and then cover it with a small cut up square of washcloth held in place with medical tape.

But...now it's back. And now the ointment isn't working. And now I'm terrified. Since my recent heart surgery, all of my doctors have stressed over and over how important it is to keep myself from getting any kinds of infection. Anything, even something as small as a cut in my gums, can potentially lead to bacteria getting into my bloodstream and forming on my brand new heart valve. So I'm really really scared. It's 5am but the pain is so bad I can't sleep. I'm sitting on a heating pad with ichthammol ointment smeared on my butt, but it's not helping. I had to leave work early for the past two days. I almost passed out when I drove over a pot hole on the way home. I went to an art gallery opening tonight but we had to leave because I was so afraid someone would brush against my butt and I'd faint or scream. I keep accidentally bursting into tears, and it hurts to do anything. Since the abscess is basically between my butt cheeks, every time I move my butt cheeks squeeze around it and it feels like torture.

I had hoped that losing weight would also let me lose this cyst. Since it's what I consider a fat girl problem, I thought maybe, just maybe, it would disappear. Enough hard work and I wouldn't have to deal with it again.

So I'm doubly sad that I'm still facing this awful thing. And I'm so scared. I don't want the infection to reach my heart. I'm hoping it will burst on its own. Otherwise...I might be back in the hospital tomorrow. I'm not one for prayers, but I'll be praying for a miracle right now.

Update: It burst! Woohoo! Ichthammol success again!